Table 2.
Statement, N (%) selecting response options agree/strongly agree* | All Panel Members (n=70) | Clinical Researchers (n=32) | Clinicians/Professional Assoc. (n=19) | US Federal Research Funding Organizations (n=4) | Patients and Caregivers (n=15) | P value for comparison of Patients and caregivers vs. other panel members‖ |
---|---|---|---|---|---|---|
Participating in this Delphi Consensus process was important | 67 (96) | 31 (97) | 18 (95) | 4 (100) | 14 (93) | 0.52 |
In my own future research, I plan to follow the Core Outcome Set resulting from this project†, | 36§ (88) | 28 (97) | 8 (67) | N/A | N/A | N/A |
The time required of me to participate in the Delphi Consensus process was appropriate* | 64 (91) | 28 (88) | 19 (100) | 4 (100) | 13 (87) | 0.60 |
I was bothered by the attempts made to contact me to complete each survey (e.g., e-mails, phone calls or text messages) †,‡ | 3 (4) | 1 (3) | 0 (0) | 0 (0) | 2 (13) | 0.11 |
I would participate again in a research study using a Delphi Consensus process* | 62 (89) | 29 (91) | 18 (95) | 4 (100) | 11 (73) | 0.06 |
When I was voting in the Delphi consensus process I considered the prior voting results from the other stakeholder groups in my new voting* | 58 (83) | 26 (81) | 18 (95) | 4 (100) | 10 (67) | 0.11 |
When I was voting in the Delphi consensus process I considered the prior written comments from the other panel members in my new voting* | 63 (90) | 28 (88) | 19 (100) | 4 (100) | 12 (80) | 0.16 |
When I was voting in the Delphi consensus process, in reviewing prior voting results from the 4 stakeholder groups, I placed the most weight on results from… | ||||||
Clinical Researchers | 25 (36) | 15 (47) | 7 (37) | 2 (50) | 1 (7) | 0.06 |
Clinicians / Professional Association | 24 (34) | 8 (25) | 5 (26) | 2 (50) | 9 (60) | |
US Federal Research Funding Organizations | 0 (0) | 0 (0) | 0 (0) | 0 (0) | 0 (0) | |
Patients and Caregivers | 21 (30) | 9 (28) | 7 (37) | 0 (0) | 5 (33) |
Response options were Strongly agree, agree, neutral, disagree and strongly disagree
Response options were Strongly agree, agree, neutral, disagree, strongly disagree and not applicable.
1 responded ‘not applicable’
29 responded ‘not applicable’, including 3 clinical researchers, and 7 clinicians/Professional Association representatives.
Fisher’s exact test