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. Author manuscript; available in PMC: 2020 Dec 1.
Published in final edited form as: J Genet Couns. 2019 Sep 25;28(6):1189–1197. doi: 10.1002/jgc4.1171

Table 1.

Finalized list of objects used in the best-worst scaling experiment

Object Label Captured Element of Informed Consent
Assessing understanding Assessing patient understanding of key content
Complex technology Describing the technological complexities of sequencing
Managing expectations Managing patient expectations about the results
Evolving interpretation Explaining the evolution of variant interpretation
Engaging decision-making Engaging patients in collaborative decision-making
Tailoring to context Tailoring consent to the indication and context
Secondary findings Deliberating about the implications of secondary findings
VUS Results Explaining variants of uncertain significance
Negative results Clarifying the meaning of a negative result
Family implications Conveying potential implications for relatives
Insurance discrimination Warning for insurance discrimination