Table 2.

Readiness Activities Completed Post-Implementation * of Statewide Newborn Screening that Occurred for at least Two New Disorders; Collected from the New Disorders Readiness Tool, as of August 2019.

Readiness Phase	Activity	Pompe (n = 11)	MPS I (n = 13)	ALD (n = 8)	SMA (n = 5)
Approval for Funding	Fee Increase Implemented	1 (9%)	1 (8%)	0 (0%)	1 (20%)
Laboratory Readiness	Add Testing to Outside Laboratory Contract	2 (18%)	1 (8%)	0 (0%)	0 (0%)
	Train Laboratory Staff to Begin Testing	1 (9%)	1 (8%)	1 (13%)	1 (20%)
IT Readiness	Validate Changes to the Follow-up Reporting System	0 (0%)	2 (15%)	0 (0%)	1 (20%)
	Validate Changes to Electronic Results Protocol	0 (0%)	1 (8%)	0 (0%)	1 (20%)
	Other IT Activities (e.g., getting DNA sequencing into IT; changing LIMS)	1 (9%)	1 (8%)	1 (13%)	0 (0%)
Education	Identify/Modify Family Education Materials to be State Specific	0 (0%)	1 (8%)	2 (25%)	1 (20%)
	Initiate a Strategy for Family Education Materials & Create Own Family Education Materials	1 (9%)	2 (15%)	1 (13%)	1 (20%)
	Identify/Create Measures to Track Impact of Family Education Materials	5 (46%)	6 (46%)	2 (25%)	2 (40%)
	Family Education Materials are Distributed	1 (9%)	2 (15%)	0 (0%)	1 (20%)
	Identify/Modify Provider Education Materials to be State Specific	0 (0%)	1 (8%)	1 (13%)	0 (0%)
	Identify/Create Measures to Track Impact of Provider Education Materials	6 (55%)	6 (46%)	2 (25%)	2 (40%)
	Identify/Modify General Public Education Materials to be State Specific	1 (9%)	2 (15%)	0 (0%)	1 (20%)
	Initiate a Strategy for General Public Education Materials & Create Own General Public Education Materials	1 (9%)	2 (15%)	0 (0%)	1 (20%)
	Identify/Create Measures to Track Impact of General Public Education Materials	6 (55%)	7 (54%)	2 (25%)	1 (20%)
	General Public Education Materials are Distributed	1 (9%)	2 (15%)	0 (0%)	1 (20%)

* Activity may have started prior to implementation but did not end until after statewide implementation.