Table 2.
Summary of the information for the included publications.
Authors | Year | Study type and methodology | Study location | Study aim | Condition of cared-for family member | Caregiver sample | Relationship of the caregiver to the care recipienta |
Allemann et al [26] | 2019 | Qualitative study with focus groups | Sweden | Explore the perceptions of ICTb solutions as supportive solutions among informal caregivers of persons with heart failure | Heart failure | 23 | Spouse/partner: 22; Child: 1 |
Andersson et al [27] | 2017 | Qualitative exploratory descriptive study based on semistructured in-depth interviews | Sweden | Describe working informal caregiver experiences of having access to the web-based family care support network | Different conditions | 9 | Spouse: 1; child: 7; in-law: 3; niece:1 |
Austrom et al [28] | 2015 | Qualitative longitudinal study with focus groups | USc | Assess the feasibility and acceptability of a web-based video support group offered in real time for informal caregivers of persons with dementia | Dementia | 5 | Spouse: 4; parent: 1; friend: 1 |
Barbabella et al [29] | 2018 | Mixed-methods sequential explanatory study with structured questionnaires and focus groups | Germany, Italy, and Sweden | Assess the use and usability of a psychosocial web-based program for informal caregivers | Different conditions | 118 | Spouse/partner: 34; child/child-in-law: 67; other: 17 |
Bergström and Hanson [30] | 2018 | Integrative literature review | International | Explore studies concerning ICT support of adult carers of older people | N/Ad | N/A | N/A |
Boessen et al [31] | 2017 | Mixed-methods study with semistructured interviews and questionnaire | The Netherlands | Test the usability and perceived value of an online platform that aims to support the communication and collaboration between informal and professional caregivers of patients with dementia | Dementia | 7 | Spouse/partner: 1; child: 6 |
Boots et al [32] | 2016 | Exploratory mixed-methods study with focus groups, interviews, and questionnaire | The Netherlands | Development and initial evaluation of a web-based support solution for informal caregivers | Early-stage dementia | 28 | Spouse: 22; child: 2; child-in-law: 2; sibling: 1; friend: 1 |
Coffey et al [33] | 2017 | Qualitative study with semistructured interviews | US | Identify preferred sources of health information for informal caregivers | Traumatic brain injury, spinal cord injury, or burn injury | 32 | Not reported |
Cristancho et al [34] | 2015 | Mixed-methods unblinded monocentric pilot RCTe | France | Evaluate the efficacy and acceptability of a web-based psychoeducational program for informal caregivers of persons with Alzheimer disease | Alzheimer disease | 49 | Not reported |
Dam et al [35] | 2017 | Qualitative study with semistructured interviews | The Netherlands | Test the development and feasibility of an online social support intervention for informal caregivers of people with dementia | Dementia | 23 | Not reported |
Duggleby et al [36] | 2019 | Mixed-methods secondary analysis study | Canada | Compare users and nonusers of a web-based intervention for informal caregivers of older people | Alzheimer Disease | 92 | Not reported |
Gaugler et al [37] | 2016 | Mixed-methods study with survey and semistructured interview | US | Test the feasibility of an online resource for dementia caregivers | Dementia | 30 | Not reported |
Gibson et al [38] | 2015 | Qualitative study with semistructured interviews | UKf | Explore the everyday use of ICT by people with dementia and their families | Dementia | 26 | Not reported |
Grossman et al [39] | 2018 | Quantitative content analysis study | International | Identify mobile apps geared toward caregivers of older adults, catalog features, and suggest best practices for adoption | N/A | N/A | Not reported |
Heynsbergh et al [40] | 2018 | Qualitative study with focus groups and semistructured interviews | Australia | Understand how digital technology may be used to address informal caregiver needs | Cancer | 45 | Spouse: 29; parent: 13; other (relative/friend): 3 |
Holden et al [41] | 2018 | Qualitative study with semistructured interviews | US | Understand the current personal health information management practices in informal caregiving for adults with and without dementia | Dementia | 10 | Not Reported |
Kales et al [42] | 2017 | Qualitative study with focus groups | US | Develop a caregiver-focused, web-based program to assess and manage behavioral and psychological symptoms of dementia | Dementia | 26 | Adult child: 15; spouse: 6; other relative: 5 |
Kim [43] | 2015 | Quantitative cross-sectional and descriptive correlational design study using a secondary analysis | US | Understand internet use among dementia informal caregivers | Dementia | 450 | Spouse: 29; parent: 15; child or grandchild: 335; other type of relative: 38; friend/nonrelative/neighbor: 29; missing data :4 |
Núñez et al [44] | 2016 | Pilot randomized controlled pre-post | Denmark, Poland, and Spain | Assess the satisfaction of the informal caregivers with an ICT platform | Dementia | 61 | Not reported |
O’Connor et al [45] | 2016 | Qualitative exploratory study with focus groups and interviews | UK | Explore barriers experienced by participants during the co-design of mobile app for informal caregivers | Dementia | 16 | Not reported |
Phongtankuel et al [46] | 2018 | Qualitative study with semistructured interviews | US | Explore informal caregiver receptivity and concerns in using mHealth apps | Different conditions | 80 | Child: 46; spouse:10; other relative: 19; friend: 5 |
Ploeg et al [47] | 2018 | Qualitative study with semistructured interviews | Canada | Understand how web-based support help informal caregivers | Multiple chronic conditions | 56 | Spouse/partner: 31; son/daughter :22; daughter-in-law: 2; grand-daughter: 1 |
Schaller et al [48] | 2016 | Mixed-method design with questionnaires and interviews | Germany | Assess the usefulness and impact of the eHealth Monitor Dementia Portal service in the dementia care | Dementia | 25 | Spouse:11; child: 9; relative: 5; grand-daughter: 1 |
Schulz et al [49] | 2016 | Quantitative study with online survey | US | Assess whether and how much informal caregivers are willing to pay for technologies designed to help monitor and support care recipients | Different conditions | 512 | Not reported |
Sriram et al [50] | 2019 | Systematic review | International | Explore the positive and negative aspects, knowledge, acceptance, and ethical issues in the use of assistive technology by caregivers of persons with dementia | N/A | N/A | N/A |
Tonsaker et al [51] | 2016 | Qualitative study with focus groups | Canada | Investigate how caregivers access and use information on the internet about caregiving and their perspectives on the design and features of a new personal health experiences website | Different conditions | 16 | Not reported |
Turk et al [52] | 2019 | Qualitative study with focus groups and semistructured interviews | UK | Explore the perceived usefulness and ease of use of a personalized web-based resource for informal caregivers | Different conditions | 50 | Not reported |
Vaughan et al [53] | 2018 | Mixed-methods study with survey, focus groups and semistructured interview | US | Examine use and perceptions of a web-based social support intervention for informal caregivers | Different conditions | 211 | Spouse/partner: 186; other: 31 |
Walker et al [54] | 2016 | Qualitative study with focus groups | US | Gain insights into how older people and their families manage health information and communication | Different conditions | 23 | Not reported |
Werner et al [55] | 2017 | Qualitative study with focus groups | US | Identify barriers to information needs of informal caregivers to manage dementia-related behavioral symptoms | Dementia | 26 | Not reported |
aSome participants in some studies cared for multiple family members. Therefore, counts do not add up to the sample size.
bICT: information and communication technology.
cUS: United States.
dN/A: not applicable.
eRCT: randomized controlled trial.
fUK: United Kingdom.