Table 2.
Advantages of ODK • Records were less likely to be lost, particularly investigation results • Digital photos of x-rays could be stored for comparison over time • Easier to transfer contact tracing information for patients moving districts • Faster than paper, especially when using predictive text |
Disadvantages of ODK • Submitted data was not immediately visible on the device • Registry numbers had to be entered multiple times (once on each form) |
Improvements suggested by staff • Make data more rapidly available for viewing • Reduce the number of forms • Allow data entry on PC • Auto-populate certain fields e.g. follow up date • Create a system that would automatically send out reminders to patients via SMS/email of upcoming appointments |
Reasons given to staff by patients for refusing to join registry • Already taking part in multiple other research studies • Didn’t have time to bring their contacts to dispensary during study period • Concern regarding security of their data being sent electronically – particularly that medical history would be shared on social media |
Improvements suggested by patient • To be able see their own e-record. |
Reasons given on anonymous feedback forms • Not wanting to share medical or personal data, even for research purposes • Concern that their ‘information would be lost in the internet’ • Not understanding the purpose of the study (non-participant) |