TABLE 3.
Structural and medical characteristics
|
Total n = 196 |
Age group 1 (18–30 years) n = 90 |
Age group 2 (31–45 years) n = 60 |
Age group 3 (46–60 years) n = 38 |
Age group 4 (≥61 years) n = 8 |
|
|---|---|---|---|---|---|
| Diagnosis, n (%) | |||||
| MMC | 179 (91) | 84 (93) | 56 (93) | 32 (84) | 7 (88) |
| Lipomeningocele | 14 (7) | 4 (4) | 3 (5) | 6 (16) | 1 (12) |
| SB occulta | 3 (1) | 2 (2) | 1 (2) | — | — |
| Hydrocephalus, n (%) | 123 (63) | 68 (76) | 42 (70) | 12 (32) | 1 (13) |
| >2 shunt revisions, n (%) | 48 (39) | 19 (28) | 19 (45) | 10 (83) | — |
| Orthopedic surgery | |||||
| Earlier in life, n (%) | 134 (68) | 63 (70) | 43 (72) | 23 (61) | 5 (63) |
| Last year, n (%) | 2 (1) | 2 (2) | — | — | — |
| Spinal fusion, n (%) | 32 (16) | 20 (22) | 11 (18) | 1 (3) | — |
| Tethered cord symptoms | |||||
| Earlier in life, n (%) | 53 (27) | 36 (40) | 11 (18) | 5 (13) | 1 (12) |
| Last year, n (%) | 5 (3) | 3 (3) | 2 (3) | — | — |
| Pain, n (%) | 78 (40) | 31 (34) | 22 (37) | 20 (53) | 5 (63) |
| Epilepsy, n (%) | 16 (8) | 3 (3) | 8 (13) | 4 (11) | 1 (13) |
| Latex allergy, n (%) | 62 (32) | 36 (40) | 23 (38) | 3 (8) | — |
| Pressure ulcers, n (%) | 39 (20) | 18 (20) | 9 (15) | 10 (26) | 2 (25) |
| Length, mean (SD) | 158 (14.1) | 159 (14.4) | 157 (13.5) | 156 (13.7) | 158 (17.3) |
| Women, mean (SD) | 152 (12.3) | 153 (13.5) | 151 (12.5) | 151 (10.7) | 150 (11.9) |
| Men, mean (SD) | 164 (13.2) | 163 (13.5) | 163 (11.9) | 168 (14.4) | 179 (12.7) |
| Weight, md (IQR) | 67 (56–81) | 65 (52–75) | 71 (60–83) | 67 (58–82) | 66 (55–91) |
| Women, md (IQR) | 63 (50–75) | 55 (47–75) | 66 (57–78) a | 64 (53–73) a | 60 (54–74) a |
| Men, md (IQR) | 72 (61–85) | 67 (60–82) | 75 (68–84) a | 88 (72–101) a | 90 (87–90) a |
| BMI, md (IQR) | 27 (23–31) | 25 (16–52) | 28 (20–45) | 26 (21–59) | 28 (18–36) |
| Women, md (IQR) | 26 (22–32) | 23 (21–28) | 29 (25–35) a | 26 (24–35) | 28 (25–35) |
| Men, md (IQR) | 27 (24–31) | 26 (22–30) | 28 (24–32) a | 28 (25–33) | 28 (25–28) |
| Bladder emptying method | |||||
| Spontaneous micturation b | 40 (20) | 14 (16) | 9 (15) | 13 (34) | 4 (50) |
| CIC c | 105 (54) | 61 (67) | 34 (57) | 10 (26) | 2 (25) |
| Indwelling catheter d | 6 (3) | 1 (1) | 1 (2) | 3 (8) | 1 (12.5) |
| Urological surgery e | 45 (23) | 14 (16) | 16 (26) | 12 (32) | 1 (12.5) |
| Bladder incontinence f | 152 (78) | 69 (76) | 50 (83) | 28 (74) | 5 (63) |
| Bowel regime | |||||
| Normal g | 123 (63) | 48 (53) | 38 (63) | 30 (79) | 8 (100) |
| Other regimes h | 73 (37) | 42 (47) | 22 (37) | 8 (21) | — |
| Faecal incontinence f | 150 (77) | 66 (73) | 52 (86) | 28 (74) | 4 (50) |
Number (n), Myelomeningocele (MMC), Spina bifida (SB), Median (Md), (IQR) Interquartile range (IQR), Standard
Deviation (SD), Body Mass Index (BMI), Clean intermittent catheterization (CIC).
Normal distributions reported in mean, non‐normal reported in median.
Normally distributed, median used to compare with the groups not normally distributed.
Including strain.
Clean intermittent catheterization.
Kathéter À Demeure or supra pubic catheter.
Vesicostomy, continent urinary diversion or ileal conduit.
Ranging from daily ≤ once a month.
Including medication.
Reflex/straining, manual evacuation, ostomy, irrigation.