Table 1.
ACHD PRO Domain | Comparison Standard |
---|---|
Physical limitations | SF‐36 Physical Function domain, KCCQ Physical Limitation scale, NYHA FC, 6 MWT |
Symptoms | KCCQ Symptom score, NYHA FC |
Arrhythmia | No valid scale exists |
Quality of life | KCCQ Quality of Life scores, SF‐36 General Health score |
Psychological Burden | PHQ‐8 and GAD‐7 |
6MWT indicates 6‐minute walk test; ACHD PRO, adult congenital heart disease patient‐reported outcome metric; GAD‐7, 7‐item Generalized Anxiety Disorder questionnaire; KCCQ, Kansas City Cardiomyopathy Questionnaire; NYHA FC, New York Heart Association functional class; PHQ‐8, 8‐item Patient Health Questionnaire; and SF‐36, Rand 36‐item Short Form.