Table 2.
Data Sharing Type | Your/your child’s data will be… |
---|---|
No sharing | “stored for future research by the research team.” |
Controlled access | “shared with other researchers in one or more “controlled-access” databases. This means that only researchers who apply for and get permission to use the information for a specific research project will be able to access the information. Your data will not be labeled with [your name/your child’s name] or other information that could be used to easily identify you [or your child].” |
Public access | “made freely available in a public, unrestricted database that anyone can use. This public information will not be labeled with [your name/your child’s name] or other information that could be used to easily identify you [or your child].” |
Restricted zip code | “made freely available in a public, unrestricted database that anyone can use. This will include basic information such as your race, ethnic group, and sex; your opinions about causes of breast cancer and your responses to questions about environmental health topics; your product use information; your personalized exposure report; and some variables that we will obtain from the 2010 US Census report to describe your community (such as median household income in your area). Your zip code will be shared with other researchers in a “controlled-access” database. This means that only researchers who apply for and get permission to use the information for a specific research project will be able to access this information. Neither the public information nor the data in the controlled-access database will be labeled with your name or other information that could be used to easily identify you.” |
“Restricted zip code” sharing type was only paired with vignette 3.