Table 4.
Percentage Who Expressed Interest in and Number who Viewed Hypothetical Vignette Studies by Data Sharing Type (N = 1,575).
| Data Sharing Type Described in Vignette | ||||||||
|---|---|---|---|---|---|---|---|---|
| None | Controlled | Public | Restricted Zip Code | |||||
| % IIP (N viewed) |
% IIP (N viewed) |
% IIP (N viewed) |
% IIP (N viewed) |
|||||
| Overall | 81 | (503) | 86 | (500) | 82 | (489) | 93 | (83) |
| Age | ||||||||
| 18–35 years | 68 | (31) | 83 | (24) | 72 | (25) | 83 | (6) |
| 36–50 years | 87 | (104) | 88 | (90) | 86 | (93) | 100 | (9) |
| 51–64 years | 78 | (198) | 86 | (208) | 78 | (184) | 93 | (29) |
| 65+ years | 86 | (121) | 87 | (146) | 86 | (141) | 91 | (33) |
| Missing | 76 | (49) | 78 | (32) | 78 | (46) | 100 | (6) |
| Race | ||||||||
| White | 81 | (419) | 87 | (439) | 82 | (421) | 93 | (75) |
| Non-White | 93 | (28) | 89 | (19) | 79 | (19) | 67 | (3) |
| Prefer not to answer | 71 | (7) | 50 | (8) | 80 | (5) | -- | -- |
| Missing | 76 | (49) | 76 | (34) | 80 | (44) | 100 | (5) |
| Ethnicity | ||||||||
| Hispanic/Latina | 64 | (11) | 71 | (7) | 71 | (7) | 100 | (2) |
| Non-Hispanic/Latina | 82 | (441) | 87 | (457) | 82 | (435) | 92 | (75) |
| Prefer not to answer | 100 | (3) | 75 | (4) | 67 | (3) | 100 | (1) |
| Missing | 75 | (48) | 78 | (32) | 80 | (44) | 100 | (5) |
| Education | ||||||||
| High school diploma or GED | 90 | (10) | 86 | (7) | 82 | (11) | 100 | (1) |
| Some college but no degree | 85 | (41) | 92 | (40) | 83 | (47) | 100 | (11) |
| Associate degree | 65 | (26) | 85 | (34) | 81 | (32) | 67 | (3) |
| Bachelor’s degree (e.g. BA, BS) | 82 | (147) | 87 | (157) | 81 | (149) | 93 | (27) |
| Graduate or professional degree | 82 | (229) | 86 | (227) | 83 | (204) | 92 | (36) |
| Prefer not to answer | 100 | (2) | 67 | (3) | 50 | (2) | -- | -- |
| Missing | 75 | (48) | 78 | (32) | 80 | (44) | 100 | (5) |
| Scenario | ||||||||
| 1A: Smallville Breast Cancer Study, EMR data | 84 | (76) | 85 | (89) | 80 | (76) | -- | -- |
| 1B: Smallville Breast Cancer Study, self-reported health data | 91 | (82) | 95 | (80) | 90 | (72) | -- | -- |
| 1C Smallville Water Study, EMR data | 81 | (72) | 81 | (70) | 82 | (68) | -- | -- |
| 2A: Children’s Everyday Exposure Study, blood samples & genetic analyses | 72 | (67) | 84 | (67) | 70 | (54) | -- | -- |
| 2B: Same as 2A but no individual report-back | 62 | (72) | 68 | (69) | 62 | (72) | -- | -- |
| 2C: Children’s Everyday Exposure Study, environmental samples | 83 | (66) | 97 | (61) | 90 | (70) | -- | -- |
| 3: Exposure Reduction Study, opinions, zip code | 91 | (68) | 92 | (64) | 92 | (77) | 93 | (83) |
%IIP = percentage interested in participating. N viewed = total number who viewed the data sharing type. None = data restricted to use for future research by the research team. Controlled = data available to researchers who apply for and get permission to use the data for a specific project. Public = data are freely available in a public, unrestricted database. Restricted zip code = most data shared in a publicly accessible database but zip code is stored in a controlled-access database. The restricted zip code data sharing type only occurred in combination with scenario 3. EMR = electronic medical record.