Table 5.
Modified Poisson Regression Results Showing Associations Between Experimentally Manipulated Study Features and Proportion Interested in Participating.
| Vignette Pair | Factor | Level | RR | 95% CI |
|---|---|---|---|---|
| Model 1 (N = 475) | ||||
| 1A & 1B Smallville Studies |
EMR access | No (health questionnaire) | REF | |
| Yes | 0.9 | (0.84, 0.97) | ||
| Data sharing type | Controlled-access | REF | ||
| None | 0.97 | (0.9, 1.05) | ||
| Public-access | 0.95 | (0.87, 1.03) | ||
| Model 2 (N = 451) | ||||
| 1A & 1C Smallville Studies |
Purpose | Follow-up after municipal water contamination | REF | |
| Investigation of breast cancer cluster | 1.02 | (0.94, 1.12) | ||
| Data sharing type | Controlled-access | REF | ||
| None | 0.99 | (0.89, 1.09) | ||
| Public-access | 0.97 | (0.88, 1.08) | ||
| Model 3 (N = 401) | ||||
| 2A & 2B Children’s Everyday Exposure |
Personal results | Receive overall results only | REF | |
| Receive personal and overall results | 1.17 | (1.03, 1.33) | ||
| Data sharing type | Controlled-access | REF | ||
| None | 0.88 | (0.76, 1.03) | ||
| Public-access | 0.88 | (0.75, 1.03) | ||
| Model 4 (N = 385) | ||||
| 2A & 2C Children’s Everyday Exposure |
Sample type | Biological | REF | |
| Environmental | 1.2 | (1.09, 1.31) | ||
| Data sharing type | Controlled-access | REF | ||
| None | 0.86 | (0.77, 0.96) | ||
| Public-access | 0.89 | (0.81, 0.99) | ||
| Model 5 (N = 292) | ||||
| 3a Exposure Reduction | Data sharing type | Controlled-access | REF | |
| None | 0.99 | (0.89, 1.1) | ||
| Public-access | 1 | (0.91, 1.1) | ||
| Most data public-access, zip code in controlled-access | 1.01 | (0.92, 1.1) | ||
EMR = electronic medical record, RR = risk ratio
a
In group 3, only the type of data sharing varied, so there was no vignette pair.