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. Author manuscript; available in PMC: 2021 Jun 1.
Published in final edited form as: Leuk Lymphoma. 2020 Feb 24;61(6):1406–1417. doi: 10.1080/10428194.2020.1719090

Table 4:

Unmet Caregiver Partner Needs (N=9)

Category Unmet Need N %
Relationship I need help to deal with the impact that cancer has had on my relationship with my partner 7 78
    I need help dealing with changes that cancer has caused my partner 6 67
    I need help to reduce stress in my partner’s life 5 56
    I need help to manage ongoing side effects and/or complications that my partner experiences as a result of their treatment 5 56
    I need help communicating with my partner and/or family 5 56
    I need help to know how to support my partner and/or family 5 56
    I need help adjusting to changes to my partner’s body 5 56
    I need help to address problems with our sex life 5 56
    I need help to manage my concerns about the cancer coming back 3 33
    I need to talk to others who have had a partner experience cancer 3 33
    My partner needs help to move on with their life 3 33
    I need help to cope with others not acknowledging the impact that having had a partner experience cancer has had on my life 3 33
Information I need up to date information 3 33
    I need information provided in a way that I can understand 2 22
    I need information relevant to my needs as a partner 1 11
Partner Impact I need help with trying to make decisions about my life in the context of uncertainty 6 67
    I need more accessible hospital parking 4 44
    I need help to deal with changes to my partner’s working life and/or usual activities 4 44
    I need help to deal with the impact that my partner’s cancer has had on my working life and/or usual activities 4 44
    I/we need help to find out about financial support and/or government benefits to which we are entitled 4 44
    I need help to manage additional responsibilities as a result of my partner’s illness 4 44
    I need help to make my life count 4 44
    I need help to explore my spiritual beliefs 3 33
    I need help with my own health problems 2 22
Comprehensive Cancer Care I need to know that all my partner’s doctors talk to each other to coordinate my partner’s care 5 56
    I need to feel like I am managing my partner’s health together with the medical team 4 44
    I need local health care services that are available when my partner requires them 3 33
    I need my complaints regarding my partner’s care to be properly addressed 2 22
Emotional Support I need emotional support to be provided for me 5 56
    I need emotional support to be provided for my loved ones 4 44
Other Needs    I need my partner to have an ongoing case manager to whom I can go to find out about services whenever they are needed 4 44
    Due to my partner’s cancer, we need help getting life and/or travel insurance 4 44
    I need help to handle the topic of cancer in social and/or work situations 3 33
    Due to my partner’s cancer, I/we need help accessing legal services 2 22
    We need help with having a family due to fertility problems 0 0