Table 5:

Mood, Burden, Quality of Life, Caregiver Reaction (N=14)

HADS Anxiety Total Score (N=14)	N	%
0–7 (normal)	5	36
8–10 (mild)	3	21
11–14 (moderate)	2	14
15+ (severe)	4	29
Depression Total Score (N=14)	N	%
0–7 (normal)	12	86
8–10 (mild)	0	0
11–14 (moderate)	0	0
15+ (severe)	2	14
CBI Burnout and Needing Respite (N=13)	N	%
≤36 (Not at burnout risk)	8	62
>36 (Burnout risk)	5	38
≤24 (Not needing to seek respite care)	6	46
>24 (Needing to seek respite care)	7	54
McGill total and subscale scores (Number of items) (N=14)	Mean	St.Dev.	Min	Max	Completing all items (N/%)
Overall QOL (14 items)	6.7	2.6	0.0	10	14	100
Physical (3 items)	7.5	2.8	2	10	14	100
Psychological (4 items)	6.5	3.1	0.5	10	14	100
Existential (4 items)	6.4	2.4	1.8	9.5	14	100
Social (3 items)	6.7	2.9	1.7	10	14	100
Total Score (mean of 4 subscales)	6.8	2.4	1.5	9.4	14	100
Caregiver Reaction Assessment Total and Subscales (N=14)	Mean	St.Dev.	Min	Max	N	%
Total (24 items)	2.9	0.2	2.5	3.3	13	93
Factor 1: Caregiver’s Esteem (7 items)	3.6	0.8	2.1	5.0	14	100
Factor 2: Lack of Family Support (5 items)	2.4	0.5	1.4	3.4	14	100
Factor 3: Impact on Finances (3 items)	2.4	1.2	1.0	4.7	14	100
Factor 4: Impact on Schedule (5 items)	3.2	0.9	2.0	4.6	13	93
Factor 5: Impact on Health (4 items)	2.0	0.5	1.3	3.0	14	100
Caregiver Burden Inventory Total and Subscales (N=14)	Mean	St.Dev.	Min	Max	N	%
Total (24 items)	31.1	21.6	8	72	13	93
Time Dependence Burden (5 items)	8.9	6	1	20	14	100
Developmental Burden (5 items)	10.5	5.9	3	20	14	100
Physical Burden (4 items)	5.2	4.7	0	16	14	100
Emotional Burden (5 items)	5.4	5.1	0	15	14	100
Social Burden (5 items)	3.9	3.9	0	12	13	93