Table 2.

Characteristics of the Decision and Decision-maker for the Most Difficult Decision Made

Decision and decision-maker characteristic		N (%)
Most difficult decision (n = 401)
	Major surgery	101 (25.19)
	Life support	95 (23.69)
	Hospice	78 (19.45)
	Cancer treatment	40 (9.98)
	Code status	39 (9.73)
	Institutionalization	25 (6.23)
	Other	23 (5.74)
Time since decision (n = 436)
	< 3 months	27 (6.19)
	3–11 months	45 (10.32)
	1–2 years	74 (16.97)
	3–10 years	185 (42.43)
	> 10 years	105 (24.08)
Person decision was for (n = 435)
	Your parent	200 (45.98)
	Yourself	90 (20.69)
	Someone else	67 (15.4)
	Spouse or partner	59 (13.56)
	Your child	19 (4.37)
		Mean (SD), min, max
Health literacy of decision-maker
	Social support for health	3.29 (0.6) 1, 4
	Appraisal of health information	3.1 (0.55) 1, 4
	Ability to actively engage with healthcare providers	4.07 (0.64) 1.2, 5
	Understanding health information well enough to know what to do	4.22 (0.58) 1.6, 5
Age for whom decision made		67.71 (21.36) 0, 98
Decisional conflict		24.06 (16.77) 0, 84.38