Table 2.

Characteristics of children who were, and were not, provided with Home care Service, HCS, children with parents participating in acceptability assessment

Characteristics	Provided HCS	Rejected HCS	Participants in the acceptability assessment
Child's age at first referral	n = 171	n = 34	n = 23
(median, [IQR] (min‐max))	5.5 [2.5–9.0] (0.1–18)	5.0 [1.9–11.3] (0.1–18)	6.0 [1.5–10.0] (0.5–16)
Sex (n (%))	n = 171	n = 34	n = 23
Female	78 (45.6)	18 (52.9)	9 (39.1%)
Diagnosis (n (%))	n = 171	n = 34	n = 23
Arthritis	2 (1.2)	1 (2.9)	1 (4.3)
Circulatory illness	8 (4.7)	2 (5.7)	2 (8.7)
Cystic fibroses	11 (6.4)	0	0
Digestive illness	10 (5.8)	3 (8.8)	1 (4.3)
Haemato‐immunologic illness	4 (2.3)	1 (2.9)	0
Hepato‐nephrological	12 (7.0)	3 (8.8)	3 (13.0)
Infection	9 (5.3)	3 (8.8)	1 (4.3)
Lyme decease	29 (17.0)	0	3 (13.0)
Multiple illnesses	7 (4.1)	4 (11.8)	0
Neoplasm	43 (25.1)	3 (8.8)	10 (43.5)
Neuro‐muscular illness	22 (12.9)	10 (29.4)	1 (4.3)
Orthopaedic	6 (3.5)	0	0
Respiratory illness	5 (2.9)	1 (2.9)	1 (4.3)
Other	3 (1.8)	3 (8.8)	0
Duration of ongoing care	n = 162		n = 21
Days (median [IQR] (min‐max))	7.0 [4.0–10.0] (1–514)	–	8 [5–19] (1–282)
HCS visits nurse	n = 160		n = 22
median [IQR] (min‐max))	8 [5–14] (1–137)	–	13 [7–26] (1–123)
HCS visits physician	n = 12		n = 4
median [IQR] (min‐max))	5 [1–9] (1–28)	–	5[2–22.5] (1–28)
Distance from family residence to nearest paediatric inpatient department (km) (n (%))	n = 166	n = 33	n = 23
<20	94 (55.0)	16 (47.1)	11 (47.8)
20–50	58 (33.9)	11 (32.4)	10 (43.5)
>50	14 (8.2)	6 (17.6)	2 (8.7)
Dead at end of data inclusion (n (%))	n = 168	n = 30	n = 23
Yes	18 (10.1)	2 (6.6)	4 (17.4)