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. 2020 Aug 14;15:1393–1407. doi: 10.2147/CIA.S257317

Table 2.

Comparison Between Original HOP and “Who to Tell, How and When?” Adaptation for People Living with Dementia

Honest Open Proud “Who to Tell, How and When?”
Session TitleContents Session Title Contents
Considering the pros and cons of disclosing:
  • The stories we tell ourselves/identify beliefs participants hold about themselves;

  • Identifying hurtful and helpful attitudes about mental illness;

  • Challenge personally hurtful beliefs;

  • Weigh pros and cons of disclosure to facilitate a decision on whether to disclose.

Session 1 Talking about dementia
  • Talking about dementia – what’s in a name?

  • What might a diagnosis mean for a person’s sense of “who they are” and their outlook on life?

  • What are the advantages and disadvantages of telling or not telling others

Different ways to disclose:
  • Different ways to disclose and weighing the pros and cons of each;

  • Selecting a person to whom one might disclose;

  • Consider how others might respond to a disclosure and how their response might affect one’s self.

Session 2 Who to tell, how and when?
  • Different ways to tell others

  • Who already knows and who in your life do you want or may want to tell. Who are you unsure about and must not be told

  • How and when to tell others?

  • What may the reactions of others be?

Telling your story
  • How to tell one’s story in a personally meaningful way;

  • Review how telling one’s story went;

  • Peer support for disclosure;

  • Put together all that’s been learnt in order to move forward.

Session 3 Support for me, for you, for us
  • Sharing experiences of telling others

  • Planning to tell someone (who, how and when?)

  • Whose diagnosis is it?*

  • When other people do the telling*

  • Where may you find sources of support*

Notes: *Elements unique to “Who to tell, how and when?”.