Table 1.

Experiences of waiting and selected corresponding losses

Experience of waiting	Potential losses	Control
TP53 genetic test results	Possible futures	High control
Scheduling, completing, returning for screening or surveillance findings	Faith in body
One’s own cancer diagnosis	Healthy identity	Low/no control
Change in physical aesthetic, suffering a subsequent diagnosis or treatment or risk- reducing surgery	Physicality, agility, fertility
Child(ren)’s mutation status, cancer diagnosis or diagnoses at a ‘young age’	Future
Time to next cancer diagnosis in an individual or family group	Feeling “normal”
Failure of treatment availability or clinical trials	Possibility, vitality