Table 4.
Follow-up data.
| Patient number | 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 |
|---|---|---|---|---|---|---|---|---|---|
| Type of surgery | Multiple pelvic tumors resected | Right adrenalectomy | Removal of retroperitoneal PGL | Right extra adrenal PGL | Aortocaval PGL | Bilateral adrenalectomy | Left adrenalectomy | Multiple Para aortic PGLs removed | Multiple PGLs in thorax removed |
| Time elapsed from surgery to most recent follow-up (years) | 3.2 | 2.0 | 2.8 | 2.0 | 2.0 | 2.4 | 1.5 | 1.6 | 1.3 |
| Catecholamine and metanephrines values at most recent follow-up | NMN 2.2 X ULN NE 1.2 X ULN MN 1.8×ULN | WNL | WNL | WNL | WNL | Not done | WNL | NE1.6×ULN D 2×ULN NMN 2.8×ULN MN 2.3×ULN | D 1.2×ULN |
| Pheo/Para status at follow-up? (Remission, Metastatic, etc.) | Small metastatic pelvic lesion | Remission | Remission | Remission | Remission | Remission | Remission | Widespread skeletal disease+metastatic lymph nodes | Retroperitoneal mass skeletal metastases |
| Symptoms of inattention, hyperactivity, impulsivity | Resolution of ADHD | Persistence of symptoms of inattention and aggression | Persistence of ADHD | Resolution of ADHD | Resolution of ADHD | Improvement of ADHD | Continues to have panic attacks and anxiety | Persistence of ADHD and coexisting neuro-developmental delay | Persistence of ADHD |
| On ADHD meds at time of post-surgical follow-up? | No | No | Amphetamine salts, Guanfacine | No | No | No | No | No | Atomoxetine |