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. 2020 Aug 22;60(5):e21–e24. doi: 10.1016/j.jpainsymman.2020.08.022

Table 2.

Sample Comments From Part 1 and Part 2 of the Workshops

Workshop Part The best part of the event was
P1
  • I noted how the presenters used very compassionate, understanding language.

  • Appreciated that it addressed current situation. Questions at end were helpful: good that coordinator selected those with multiple or more general usefulness, rather than giving time to someone with an important but ultra-specific question.

  • I finally got around to completing my advance health directive because of this event. I'd been meaning to but this was just the push I needed.

  • Overall, I thought it was done well and the fact that it was focused around COVID-19 made it very timely. I enjoyed the Q&A because many of the questions were questions I had.

P2
  • Hearing the presenter talking through the form and vocalizing the different factors that she used to weigh into her decisions, in addition to balancing family situation and spouse preference. I really appreciated the candor and sensitivity that both presenters brought to the sessions.

  • I think it was really helpful to hear someone talk about how they would actually make these personal decision[s] and what they would need to do to feel comfortable making them.

This event could be improved in the future by:
P1
  • We want to better understand, in more detail, the long-term consequences of extended intubation and sedation that characterize the treatment of the more severe cases.

  • Please add an attorney to your panel to answer the legal questions about the AHCD form, that was asked during Q&A.

  • For those questions that went unanswered, consider answering them on your website.

P2
  • Perhaps more discussion and ideas about choosing a decision maker for single people or those who do not feel their family members may be up to playing that role.

  • I'm usually very critical, for example, I barely remember the first seminar presented about the topic, but this particular workshop was very helpful and well done. Maybe there could have been a little discussion about how to make it legal and where to put it once completed, although I notice in the paperwork itself it goes into that a bit.

P1 = Part 1 (initial webinar); COVID-19 = coronavirus disease 2019; Q&A = question and answer; P2 = Part 2 (small group discussion); AHCD = advance health care directive.