Table 1.
Characteristics of respondents.
| Characteristics | Sample n = 25 |
|---|---|
| Age bands | |
| 18–26 | 5 |
| 27–31 | 7 |
| 32–50 | 6 |
| 51–75 | 7 |
| Education | |
| Other | 3 |
| GCSC/o-level | 4 |
| A-level | 9 |
| Degree | 5 |
| Postgraduate | 4 |
| Number of Healthcare professionals seen in past 12 months for epilepsy | |
| 1 | 9 |
| 2 | 12 |
| 3 | 3 |
| 4 | 1 |
| Living situation | |
| Alone | 5 |
| With others | 20 |
| Tonic clonic seizure frequency (per year) | |
| Unclear | 5 |
| 0 | 2 |
| 1–2 | 5 |
| 3–6 | 7 |
| 12+ | 6 |
| Self-report ambulance use (past 12 months)a | |
| 0 | 1 |
| 1–2 | 15 |
| 3–4 | 5 |
| 5–7 | 3 |
| 13 | 1 |
| Self-report ED attendance (past 12 months)a | |
| 0 | 4 |
| 1–2 | 13 |
| 3–4 | 5 |
| 5–7 | 2 |
| 12 | 1 |
| Strategy used to communicate care needs and/or preferences | |
| Medic Alert style bracelet | 11 |
| Wallet ID card | 7 |
| Mobile App | 5 |
| LinkLine device | 2 |
| Wearable technology | 1 |
a
Note: Eligibility criteria regarding service use was that PWE in the study had visited ED and/or had contact with the ambulance service in the past 12 months for epilepsy.