Table 1.
Search strategy for MEDLINE.
| Via OVID, search date 8 June 2017, records identified 256 |
| Database: Ovid MEDLINE(R) Epub Ahead of Print, In-Process and Other Non-Indexed Citations, Ovid MEDLINE(R) Daily and Ovid MEDLINE(R) <1946 to Present> |
| 1 exp Motor Neuron Disease/ (23,769) |
| 2 Amyotrophic Lateral Sclerosis/ (15,876) |
| 3 (motor adj2 neuron* adj2 disease).ti,ab. (4883) |
| 4 (motorneuron* adj3 disease).ti,ab. (25) |
| 5 MND.ti,ab. (1675) |
| 6 Amyotrophic lateral sclerosis.ti,ab. (18,683) |
| 7 ALS.ti,ab. (21,267) |
| 8 1 or 2 or 3 or 4 or 5 or 6 or 7 (39,560) |
| 9 palliative care/ or terminal care/ or hospice care/ or hospices/ or respite care/ (75,653) |
| 10 ((palliat$ or terminal or hospice* or respite or end of life) adj3 (care or caring)).ti,ab. (33,524) |
| 11 Bereavement/ (4944) |
| 12 Grief/ (8463) |
| 13 (bereave$ or grief or griev$).ti,ab. (12,013) |
| 14 9 or 10 or 11 or 12 or 13 (99,456) |
| 15 Qualitative Research/ (34,357) |
| 16 qualitative.ti,ab. (173,469) |
| 17 findings.ti,ab. (1,689,490) |
| 18 interviews.ti,ab. (135,853) |
| 19 15 or 16 or 17 or 18 (1,907,896) |
| 20 8 and 14 and 19 (120) |
| 21 Caregivers/ (28,997) |
| 22 (caregiv$ or care giv$).ti,ab. (55,490) |
| 23 carer$.ti,ab. (11,678) |
| 24 informal care.ti,ab. (1371) |
| 25 befriending.ti,ab. (149) |
| 26 (caretak$ or care tak$ or caretaking).ti,ab. (4826) |
| 27 (caretak$ or care tak$ or caretaking).ti,ab. (4826) |
| 28 (child$ adj2 (care or cares or caring or support or supports or supporting)).ti,ab. (25,404) |
| 29 ((son or sons or daughter$ or friend$ or partner$ or spous$) adj2 (care or cares or caring or support or supports or supporting)).ti,ab. (4890) |
| 30 ((husband$ or wives or wife or spouse$ or grandparent$ or grandchild$ or neighbour$ or neighbor$ or relatives or relations or families or family or familial) adj2 (care or cares or caring or support or supports or supporting)).ti,ab. (20,475) |
| 31 ((parent$ or mother$ or father$ or maternal or paternal or filial) adj2 (care or cares or caring or support or supports or supporting)).ti,ab. (16,091) |
| 32 ((peer or peers) adj2 (care or cares or caring or support or supports or supporting)).ti,ab. (3686) |
| 33 21 or 22 or 23 or 24 or 25 or 26 or 27 or 28 or 29 or 30 or 31 or 32 (135,623) |
| 34 8 and 19 and 33 (200) |
| 35 20 or 34 (256) |
MND: motor neurone disease.