In this commentary, two adult patients and the caregiver of a patient, with type 1 diabetes share their experiences on DIY artificial pancreas systems. Their healthcare providers provide clinical perspectives.

The users' quality of life and ability to self-mange diabetes have been enhanced by this open source technology. By adopting DIY systems, they have joined a #WeAreNotWaiting community that is willing to innovate, experiment and promote technology, modelled on the function of a healthy human pancreas.

Further research would help UK regulatory bodies develop the guidance, for healthcare professionals, to support DIY APS users.