Table 2.

Results from each round, percentage of agreement for each area and the consequent decisions made

Round 1 N = 30 (12 HCPs, 18 patients)
Areas where consensus reached:	%	Areas where consensus was not reached:	Round 1 findings (overall %, unless otherwise stated) and any decisions made in italics
Ask how long a symptom has been present	Yes – HCPs 100% (12/12) Patients 88.9% (16/18) Overall 93.3% (28/30)	Choice of PROMs:  • EORTC-OV28  • FACT-O  • MDASI-OC  • MOST  • PRAE  • PRO-CTCAE (1 = not at all, 7 = very much)	EORTC – HCPs mean 5.75; patient mean 6.12 FACT-O – HCPs mean 5.25; patient mean 5.82 MDASI-OC – HCPs mean 4.58; patient mean 5.59 MOST – HCPs mean 6.00; patient mean 6.24 PRAE – HCPs mean 6.08; patient mean 6.18 PRO-CTCAE – HCPs mean 5.08; patient mean 6.00 MDASI-OC and FACT-O not rated highly so discarded in Round 1; PRO-CTCAE kept due to patient score.
Ask how frequent the symptom has been experienced	Yes – HCPs 83.3% (10/12) Patients 88.9% (16/18) Overall 86.7% (26/30)	Frequency of completion (Options: 4 monthly, 3 monthly, 2 monthly, monthly, 6 weekly, other)	4 monthly - 0 3 monthly – 36.7% (11/30) 2 monthly – 26.7% (8/30) Monthly – 20% (6/30) 6 weekly – 13.3% (4/30) Other – 3.3% 1/30 4 monthly, 6 weekly, ‘other’ discarded in Round 1.
Ask if symptom has got better / worse / not changed recently	Yes – HCPs 100% (12/12) Patients 88.9% (16/18) Overall 93.3% 28/30)	Timeframe/period of reporting (Options: Last day, last week, last 2 weeks, last month, since last reported)	Last week – 23.3% (7/30) Last 2 weeks – 23.3% (7/30) Last month – 23.3% (7/30) Since last reported – 23.3% (7/30) Last day – 6.7% (2/30) Last day option discarded in Round 1.
Ask about ongoing toxicity to chemotherapy	Yes – HCPs 75% (9/12) Patients 83.3% (15/18) Overall 80% (24/30)
Ask questions to screen for psychological wellbeing	Yes – HCPs 91.6% (11/12) Patients 72.2% (13/18) Overall 80% (24/30)	List of non-physical holistic needs – select which items should be presented to patients to indicate if they are concerned (e.g. travel insurance, sexual, emotional)	50% (15/30) felt should include all areas Highest individual items were: Emotional 40% (12/30), Psychological 33.3% (10/30) 2 patients said ‘none of areas’
		Weight change question	Highest scoring option “Have you been concerned about changes in your weight?” HCPs 75% (9/12) Patients 61.1% (11/18) Overall 66.7% (20/30) Other options discarded in Round 1.
Round 2 N = 19 (8 HCPs, 11 patients)
Areas consulted on:	Round 2 findings (overall %, unless otherwise stated)	Final decisions made:
Frequency of completion   • 3 monthly   • 2 monthly   • Monthly	• 3 monthly 68.4% (13/19; 6/11 patients, 7/8 HCPs) • 2 monthly 15.8% (3/19; 2/11 patients, 1 HCPs) • monthly 15.8% (3/19) – all patients	Did not quite meet 70% consensus overall, although 87.5% HCPs agreed. Final decision to complete 3 monthly - with anytime access for patients allowing them to report sooner/more frequently if needed
Choice of PROMs (tick ONE option)   • EORTC-OV28   • MOST   • PRAE   • PRO-CTCAE	• 10.5% (2/19; 1 patient, 1 HCPs) • 26.3% (5/19; 1 patient, 4 HCPs) • 42.1% (8/19; 5 patient, 3 HCPs) • 21.1% (4/19; all patients)	Did not reach 70% consensus. Patients chose PRAE most often 5/11 (45.5%) followed by PRO-CTCAE (4/11), HCPs chose MOST 4/8 (50%), followed by PRAE. PRAE items chosen as preferred by most overall.
Timeframe/period to reflect on when answering symptom questions:	• Last week 15.8% (3/19; all patients) • 2 weeks 47.4% (9/19; 5 patient, 4 HCPs) • Last month 21.1% (4/19; 1 patient, 3 HCPs) • Since last reported 15.8% (3/19; 2 patient, 1 HCPs)	Did not reach 70% consensus. Both patients and HCPs chose ‘last 2 weeks’ most often.
List of non-physical holistic needs Part 1: “Would a page like this be acceptable to you?” and Part 2: should patients be able to tick which issues they’d like specific advice/contact with their clinical/CNS about?	Yes to part 1 – Overall 89.5% (17/19) HCPs 100% (8/8) Patients 81.8% (9/11) Yes to part 2 – HCPs 100% (8/8) Patients 90.9% (10/11) Overall 94.7% (18/19)	Include holistic needs and ask patients if they need advice/ contact with their clinical/CNS team in relation to these
Further new areas consulted on:			Final decisions made:
Provision of self-management advice (Options: yes, unsure, no, other)	Yes – Overall 26.3% (5/19) HCPs 62.5% (5/8) Patients 0	Other – 2 patients chose ‘other’ indicating they’d want option to speak to nurse over the phone.	Split between ‘yes’ amongst HCPs, and no/unsure amongst patients. Free text comments suggested that at least contact details should be provided. Final decision to include self-management advice for mild symptoms, in particular telephone contact details for CNS team.
	No – Overall 31.6% (6/19) HCPs 25% (2/8) Patients 36.4% (4/11)	Unsure – Overall 31.6% (6/19) HCPs 12.5% (1/8) Patients 45.5% (5/11)
Ask about medication use in relation to symptoms experienced	Yes – HCPs 75% (6/8) Patients 90.9% (10/11) Overall 84.2% (16/19)		Yes include
Would this question ‘Have you been concerned about changes in your weight?’ be acceptable?	Yes – HCPs 100% (8/8) Patients 81.8% (9/11) Overall 89.5% (17/19)		“Unexpected” weight changes were always the focus of this item, and emphasised again in Round 2 free-text comments - item changed to “Have you been concerned about unexpected changes in your weight?”