Table 2.
Phase 2—Common Themes and Selected Quotes from Storyboarding Interviews (n = 17)
| Provide linear yet flexible website structure |
| • “I like that the website talks about the options and what’s important before talking about financing, but I might want to revisit the options and costs again after considering my financial resources.” |
| • “You might want to ask what matters most to everyone in the family BEFORE comparing the options.” |
| Provide variable levels of information detail and broad scope of topics |
| • “National averages may be interesting to some, but time is limited. I wouldn’t want to go through 25 pages before getting to things that are meaningful locally”. |
| • “It’s a lot of information, but I would want even more detail about some options”. |
| • “Make transportation a separate item – it is an important and significant need (and not a simple part of receiving long-term care in this [rural] area)”. |
| • “The list of options focuses on medical/physical needs; what about intellectual, social, and spiritual needs (e.g., access to books, hobbies, music, social/community activities) things that are satisfying and provide growth and well-being overall?” |
| Address common misconceptions, particularly about costs |
| • “The assumption is that as long as I can care for him, he should be at home, but maybe there are reasons it would be better to move sooner (while he still knows what’s going on).” |
| • “Need to include something to help people figure out and compare their financial resources if they sold their house (the assumption is that moving is more expensive, but it may not be if you add up all the things that you would need to pay for at home like transportation, errands, nurses, etc.).” |
| • “Need a way to directly compare the ‘real’ total costs to the family.” |
| • “Make the hidden costs of staying at home clear.” |
| Provide parallel information and decision support activities for caregivers |
| • “Acknowledge up front the care that is needed for the caregiver” (seeFigure 2). |
| • “Make the costs to caregivers a specific line item (and clarify between family caregivers versus paid caregivers).” |
| • “There’s likely to be family disagreements at this point. Tips would be helpful.” |
| • “Address the issue that many family members bring up ‘good ideas’ that need someone who has the time and expertise to make them happen.” |
| • “I would want this chart [What Matters Most to You?] – for myself and for family members to complete so we can compare and discuss” |
| • “I would print several copies out or perhaps could you provide columns for my husband to fill out too”. |
| Tailor language for older adults |
| • “Current wording seems scripted for someone who is new to thinking about long-term care; it may need adjustment for people who’ve already considered it (e.g., been a caregiver for their aging parents and are now looking for themselves).” |
| • “Change ‘Who needs care?’ to ‘For whom will long-term care be needed? (to ensure proper grammar is present to support older adults’ trust in the website’s reliability)’”. |