Table 4.
Illustrative Quotes From Patient Interviews.
| Feedback | Illustrative quotes |
|---|---|
| Step 1 | “They were pretty straightforward about it, I knew exactly what I was going through.” “For someone fully employed, it was difficult to manage time around these appointments and training.” “I had information session with doctor and nurses in Vancouver, they gave me information on how it works [ . . . ] They were helpful.” “Maybe they could go a little deeper into the issues, with both the types of dialysis like PD and hemo . . . more detail.” “[I] did a lot of research on my own and some info from the agency.” “I got a bunch of brochures, CD’s about PD [ . . . ] it was helpful because I didn’t know anything about what PD was at that time. Everything became more clear after going through the info they provided.” “I think they should cover a little bit more at that time and to make it more clear to the families because [they] are the ones who are taking care of the dialysis.” “[Significant things left out:] dialysis solutions and their impacts on the body, dietary changes.” |
| Step 4 Control | “Would like more nitty gritty of how the catheter works.” “Overall I wasn’t nervous about starting PD because I knew I’m at this point, except for the catheter insertion, I was a little nervous about that, but the nurse was so good, she told me it will be a little painful but that I will be okay.” The nurse and doctors explained everything to me so I knew what to expect; they explained everything to me in detail” |
| Step 4 Pilot | “Info up to this point was enough, was acceptable.” “[I was given] enough information to make me interested in doing it and once I did it I liked it.” “[knowing what to expect was] important for preservation of mind.” “Most valuable piece of info[ . . . ]ones that explained the dialysis and how it worked.” |
| Step 6 Control | “Nothing surprising; they made everything clear.” “They showed you everything, it was quite good.” “They come to my home, check my supplies, make sure they know where I’m doing the PD and it was all good” |
| Step 6 Pilot | “They were pretty knowledgeable and what they passed onto me I retained and I haven’t had a problem.” “I prefer being told than reading.” “[Training was] more than enough, but great.” “The binder given to me was very good; [it] would be useful if they gave it out before the catheter insertion.” |
| About the Guide | “Yea I did read it, it was helpful. I read everything they gave me.” “I found it quite interesting.” “Book was fine, self-explanatory.” “For someone going in blind, it’s very useful and written in a way that’s easy to understand with good diagrams.” |
Note. PD = peritoneal dialysis.