Table 1.
Characteristics of participants (n = 192)
| Characteristic | Mean ± SD or count (%) |
|---|---|
| Sociodemographic | |
| Age (years) | 35.7 ± 7.3 |
| Current marital status (n = 191) | |
| Single | 21 (11.0) |
| Married or registered partnership | 110 (57.6) |
| Committed relationship (cohabiting/LAT) | 57 (29.8) |
| Divorced | 3 (1.6) |
| Highest level of education (n = 192) | |
| Primary education | 1 (0.5) |
| Secondary education | 32 (16.7) |
| Secondary vocational education | 74 (38.5) |
| Higher education | 85 (44.3) |
| Currently working (n = 191) | |
| Yes | 145 (75.9) |
| No | 46 (24.1) |
| Not employed | 7 (15.2) |
| Unable to work due to health complaints | 28 (60.9) |
| Stay at home spouse or partner | 11 (23.9) |
| Diagnostic | |
| Age at first symptoms (years) (n = 191) | 24.3 ± 9.0 |
| Age at diagnosis (years) (n = 191) | 30.9 ± 7.5 |
| Delay in diagnosis (years) (n = 192) | 6.7 ± 7.6 |
| Period since diagnosis (years) (n = 192) | 4.8 ± 5.2 |
| Center of recruitment (n = 192) | |
| Hospital A (academic) | 68 (35.4) |
| Hospital B | 45 (23.4) |
| Hospital C | 37 (19.3) |
| Hospital D (academic) | 6 (3.1) |
| Hospital E | 5 (2.6) |
| Hospital F | 31 (16.1) |
| Hospital G | 0 |
| Gynecological and obstetric | |
| Age at menarche (years) (n = 191) | 12.8 ± 1.4 |
| Menstrual cycle (n = 192) | |
| Yes | 156 (81.3) |
| No | 36 (18.8) |
| Duration of menses in women with cycle (days) (n = 148) | 6.4 ± 3.2 |
| History of pregnancy (n = 192) | |
| Yes | 111 (57.8) |
| No | 81 (42.2) |
| Parity (n = 192) | |
| Parous | 91 (47.4) |
| Nulliparous | 101 (52.6) |
| History of fertility treatment (n = 192) | |
| Yes | 75 (39.1) |
| No | 117 (60.9) |
| Pregnancy wish (n = 191) | |
| Yes | 109 (57.1) |
| No | 82 (42.9) |
| Intercourse in last 3 months (n = 192) | |
| Yes | 166 (86.5) |
| No | 26 (13.5) |
| Endometriosis-associated symptoms | |
| Dysmenorrhea (women with menstrual cycle, n = 156) | |
| Yes | 154 (98.7) |
| No | 2 (1.3) |
| Severity | 7.5 ± 2.0 |
| Frequency (days/cycle) | 5.6 ± 4.9 |
| Abdominal pain between menstrual periods (n = 156) | |
| Yes | 138 (88.5) |
| No | 18 (11.5) |
| Severity | 4.7 ± 2.3 |
| Frequency (days/cycle) | 10.0 ± 8.7 |
| Abdominal pain (women without menstrual cycle, n = 36) | |
| Yes | 31 (86.1) |
| No | 5 (13.9) |
| Severity | 5.0 ± 2.8 |
| Frequency (days/month) | 14.4 ± 10.8 |
| Dyspareunia (intercourse in last 3 months, n = 166) | |
| Yes | 119 (71.7) |
| No | 47 (28.3) |
| Severity | 5.3 ± 1.9 |
| Frequency (n = 119) | |
| Rarely | 3 (2.5) |
| Sometimes | 27 (22.7) |
| Regularly | 47 (39.5) |
| Often | 20 (16.8) |
| Always | 22 (18.5) |
| Dyschezia (n = 192) | |
| Yes | 156 (81.3) |
| No | 36 (18.8) |
| Severity | 5.2 ± 2.3 |
| Frequency (n = 156) | |
| Rarely | 5 (3.2) |
| Sometimes | 34 (21.8) |
| Regularly | 46 (29.5) |
| Often | 24 (15.4) |
| Always | 21 (13.5) |
| Cyclical | 26 (16.7) |
| Dysuria (in total population, n = 192) | |
| Yes | 76 (39.6) |
| No | 116 (60.4) |
| Severity | 4.6 ± 2.4 |
| Frequency (n = 76) | |
| Rarely | 9 (11.8) |
| Sometimes | 26 (34.2) |
| Regularly | 28 (36.8) |
| Often | 11 (14.5) |
| Always | 2 (2.6) |
| Treatment | |
| First ever received treatment (n = 192) | |
| No treatment received yet | 11 (5.7) |
| Hormonal therapy | 78 (40.6) |
| Surgical therapy | 88 (45.8) |
| Hormonal and surgical therapy | 15 (7.8) |
| Currently using hormonal therapy (n = 191) | |
| Yes | 129 (67.5) |
| Progestogens only or in combination with estrogens | 84 (65.1) |
| GnRH analogues | 45 (34.9) |
| No | 62 (32.5) |
| Endometriosis surgery in medical history (n = 192) | |
| Yes | 127 (66.1) |
| No | 65 (33.9) |
| Other surgery in medical history (n = 191) | |
| Yes | 131 (68.6) |
| No | 60 (31.4) |
| Pain medication use (n = 191) | |
| Yes | 155 (81.2) |
| PCM | 120 (77.4) |
| NSAID | 107 (69.9) |
| Opiod | 21 (13.7) |
| No | 36 (18.8) |
| EHP-30 | |
| HRQoL score∗ (n = 185) | 41.8 ± 22.8 |
| 45.6 [37.1] | |
| SQoL score∗ (n = 192) | 47.5 ± 29.6 |
| 50.0 [48.8] | |
EHP-30 = Endometriosis Health Profile-30; GnRH = gonadotropin releasing hormone; HRQoL = health-related quality of life; LAT = living apart together; NSAID = non-steroidal anti-inflammatory drugs; PCM = paracetamol; SQoL = sexual quality of life.
∗
Characteristics are depicted as count with percentage (%) or mean with SD.