Table 1: Keyword MeSH terms used for search in databases.

Keywords for health data:
“Personal Health Record*”[Keyword]; PHR [Keyword]; Data [Keyword]; “data set* [Keyword]; databank [Keyword]; “data bank” [Keyword]; Health [Keyword, MeSH]; Crowd-sourced [Keyword]; crowdsourcing [Keyword, MeSH]; “health trust” [Keyword]; “health data [Keyword]; “Electronic Health Record*” [Keyword]; EHR [Keyword]; “Health Information Exchange *” [Keyword]
Keywords for cooperative:
“data cooperative” [Keyword]; Cooperative* [Keyword]; “cooperative business model*” [Keyword]; “cooperative model*” [Keyword]; Citizen-generated [Keyword]; consumer participation [MeSH]; client-generated [Keyword]; people-generated [Keyword]; public-generated [Keyword]; Citizen-driven [Keyword]; client-driven [Keyword]; people-drive [Keyword]; public-driven [Keyword]; citizen-owned [Keyword]; citizen-controlled [Keyword]; “citizen science” [Keyword]; citizen-centric [Keyword]; client-centric [Keyword]; person-centric [Keyword]; people-centric [Keyword]; “citizen empowerment” [Keyword]; “client empowerment” [Keyword]; “people empowerment” [Keyword]; “public empowerment” [Keyword]; Citizen* [Keyword]; client* [Keyword]; public [Keyword]; person* [Keyword] persons [MeSH]; Empowerment [Keyword]; power (psychology) [MeSH]; self-empowerment [Keyword]; Ownership [Keyword, MeSH]