. Author manuscript; available in PMC: 2021 Sep 1.

Published in final edited form as: J Pediatr. 2020 May 6;224:37–43.e2. doi: 10.1016/j.jpeds.2020.03.027

Table 3.

Communication outcomes after newborn screening identifies genetic carrier status

Adverse outcomes	Proportion of eligible cases
	SCH carrier group			CF carrier group
	n	eligibles	(%)	n	eligibles	(%)
1. Parent not informed about the NBS result	60	426	(14.1%)	n/a
2. An explanation was not given about the NBS result	26	366	(7.1%)	7	288	(2.4%)^*
3. Negative appraisal of provider’s explanation about the NBS result^*	30	351	(8.6%)	36	278	(13.0%)^**
4. Dissatisfaction with the experience of learning about the NBS result	26	352	(7.4%)	37	281	(13.2%)^**
5. Misconception about carrier status	102	371	(27.5%)	22	281	(7.8%)^**

p < 0.01 versus SCH group

^**

p < 0.0001 versus SCH group