Table 7.

Discussed person-generated health data (PGHD) utilisation effects on stroke survivors’ relationship with their care provider/s

Personal care goals
Relationship with care provider/s	Clinicians
After seeing her PGHD, the site 2 survivor was prompted to ask her therapist, to ask what she could do better. Most site 1 survivors agree that PGHD could potentially prompt them to contact their clinician, especially if it is at odds to how they think they are performing. Interestingly, if their PGHD is better than how they felt they did, it could potentially prompt them to tell their clinician that the results are not quite right. For one survivor, seeing PGHD would not be the instigator of seeking more help. There was also some interest with what happens to their PGHD, that is, what it is going to be used for. Another survivor would be prompted to ask their therapist if they are making progress.	Clinicians agreed that stroke survivors would potentially be prompted to contact them if they did badly, to ask how they can improve. Some clinicians also agreed that survivors would ask for more explanation about how the scores were calculated, and how their PGHD relates to their progress. Some clinicians felt that if survivors know their PGHD, it might stimulate them to be more compliant as it promotes accountability, like doing homework.