Table 2.
Additional Survey Responses
| Respondents on whether they have heard of Palliative Care | |
| Yes | 10 (30.3%) |
| No | 23 (69.7%) |
| If yes to above, level of knowledgea | |
| Slightly Knowledgeable | 8 (80%) |
| Moderately Knowledgeable | 1 (10%) |
| Very Knowledgeable | 1 (10%) |
| Participant understanding of the term – Palliative Care | |
| Stopping medical treatment only | 1 |
| Comfort measures only | 10 |
| Total care of a patient with a life limiting illness | 9 |
| Symptom management of a life limiting illness | 5 |
| Medical assisted aid in dying | 2 |
| Other: | |
| Pain Management | 2 |
| End of Life | 2 |
| Invalidatedc | 1 |
| Source of information regarding Palliative Care prior to receiving this survey b | |
| Not applicable | 17 |
| Family Physician / Primary care provider discussed it | 9 |
| Close friend or relative’s experience with Palliative Care | 4 |
| Know of someone involved or received Palliative Care | 2 |
| Conversation with friend / family / acquaintance | 0 |
| Employment in health care | 0 |
| Media (Radio, Television, Newspaper, Magazine, Website, Social media) | 0 |
| Other | 4 |
| Perceived benefits associated with palliative careb | |
| Better quality of life | 17 |
| Less suffering | 18 |
| Longer life span | 11 |
| More resources provided for patient and family | 15 |
| Hastened death | 0 |
| Other (Don’t know/Unspecified) | 5 |
| Perceived risks associated with palliative care b | |
| Worsened quality of life | 3 |
| More suffering | 3 |
| Shorter life span | 4 |
| Stopping treatment | 1 |
| Giving up hope | 1 |
| Other (Don’t know/Unspecified) | 19 |
| Invalidatedc | 6 |
| Perceived setting to receive palliative careb | |
| Home | 29 |
| Hospice | 2 |
| Hospital | 14 |
| Nursing home / Long-Term Care residence | 2 |
| Other | 0 |
| Perceived medical professional responsible for providing palliative careb | |
| Nurse | 21 |
| Doctor | 24 |
| Family/Partners/Relatives | 12 |
| Homecare Providers/Caregivers/Personal Support Worker | 7 |
| Other | 2 |
| Perceived most responsible decision maker for Palliative Care Decisions | |
| Family Member | 10 |
| Family Doctor | 4 |
| Patients | 7 |
| Specialist | 2 |
| Multiple Responses | 11 |
| Time point in illness trajectory that participants consider ideal to receive information about Palliative Care | |
| I would not want information at any point | 1 |
| I would like more information to be generally available | 25 |
| I would only want information to be provided if diagnosed with a life threatening illness | 3 |
| I would only want information if a life threatening illness became a terminal diagnosis | 4 |
| Invalidatedc | 1 |
| Discussion about death and dying in the community | |
| Not enough | 23 (67.6%) |
| About the right amount | 5 (14.7%) |
| Too much | 6 (17.6%) |
| Whether Palliative Care aligns with cultural values and/or faith/spiritual beliefs | |
| Yes | 9 (26.5%) |
| No | 15 (44.1%) |
| Unsure | 10 (29.4%) |
| Importance of religion or spiritual belief to participants in Palliative Care | |
| Not important | 5 (14.7%) |
| Important | 22 (64.7%) |
| Unsure | 7 (20.6%) |
a Subset of Patients who answered yes to question “Have you heard of Palliative Care?”
b Patients selected as many options as applicable to them, therefore total number of responses is greater than number of participants
c Invalidated – no response, or multiple selections nullifying response