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. 2020 Sep 15;202(6):795–802. doi: 10.1164/rccm.201912-2332WS

Table 6.

Research Recommendations: EVALI Registries

1. Three cohorts should be identified and followed over time:
 • Healthy vapers and dabbers
 • Patients with severe EVALI
 • Patients with nonsevere (mild, moderate, subacute, and chronic) EVALI
Cohorts containing subgroups of nicotine-only vapers and those who vape THC and CBD, as well as cases where presentations were subacute or chronic, would provide robust data for examination.
2. The working group agreed on two mechanisms by which epidemiologic data could be acquired for open sharing:
 • An open registry could be established such that patients and vapers/dabbers can register themselves and provide full details on their vaping. Registrants could use an online registry portal to grant access to their electronic medical records and therefore provide researchers invaluable access to information about disease onset, course, and resolution;
 • Individual public health departments could be contacted to request access to their datasets while managing privacy concerns, to combine all known cases into a larger, comprehensive database.

For definition of abbreviations, see Table 5.