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. 2020 Apr 27;23(4):884–892. doi: 10.1111/hex.13062

Table 1.

Interview topic guide

Topic Selected semi‐structured interview question Prompt (optional)
Decision‐making process What kind of information do you think is important to have before deciding whether or not to have a genetic test? Is there anything that you know now that you wish you had known before you made the decision? Which of these issues is the MOST important to you?
  How do you think that information should be presented? In person by a genetic counselor? Online?
Experience with the return of results Can you tell me about what it was like to receive the results of your genetic test? Is there anything that could have been done to make the results easier to understand?
Experience communicating with family How prepared did you feel, to receive the results of your genetic testing? Did you have enough information? Would you have preferred to have additional information prior to receiving those results?
  Did you choose to share the results of your genetic test? Why or why not? With which family members did you share the results? Is there anything that could have made it easier to share that information with (family member)?