Decision‐making process |
What kind of information do you think is important to have before deciding whether or not to have a genetic test? |
Is there anything that you know now that you wish you had known before you made the decision? Which of these issues is the MOST important to you? |
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How do you think that information should be presented? |
In person by a genetic counselor? Online? |
Experience with the return of results |
Can you tell me about what it was like to receive the results of your genetic test? |
Is there anything that could have been done to make the results easier to understand? |
Experience communicating with family |
How prepared did you feel, to receive the results of your genetic testing? |
Did you have enough information? Would you have preferred to have additional information prior to receiving those results? |
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Did you choose to share the results of your genetic test? Why or why not? |
With which family members did you share the results? Is there anything that could have made it easier to share that information with (family member)? |