80 biobanks in Western Australia [this group did not a formal name], Australia |
proposed biobank |
Not available |
Disease‐specific &. Population biobank |
Department of Health WA |
Perth, Western Australia, Australia |
Molster et al
35
|
Association Française contre les Myopathies, France |
1958 |
Not available |
Disease‐specific biobank |
AFM (Association Francaise contre les Myopathies) financed by Telethon |
France |
Rabeharisoa
42
|
Alaska Area Specimen Bank (AASB), United States |
1961 |
266 353 residual biologic specimens (serum, plasma, whole blood, tissue, bacterial cultures) from 83 841 persons who participated in research studies |
Population biobank |
Alaska Natives (Indian Self Determination Act (Public Law 93‐638 (1975)) |
Alaska, USA |
Parkinson et al
39
|
Avon Longitudinal Study of Parents and Children (ALPSAC), United Kingdom |
1991‐2 |
Not available |
Population biobank |
University of Bristol (Medical Research Council, the Wellcome Trust) |
Bristol/Bath, UK |
Levitt
56
|
BC Biobank, Canada |
2007 |
Not available |
Population biobank |
University Of British Columbia Department of Pathology and Laboratory Medicine, the Canadian Tissue Repository Network and the BC Cancer Agency |
British Columbia, Canada |
Walmsley,
22
Walmsley
51
|
BC Biolibrary, Canada |
2007 |
Not available |
not a biobank, a network to integrate and improve access and quality of several provincial biobanks |
University of British Columbia |
British Columbia, Canada |
O'Doherty and Hawkins,
24
O'Doherty et al,
57
Secko,
73
|
CARTaGENE, Canada |
Not available |
aims to recruit a random sample of 50 000 individuals between the age of 25 and 75 |
Population biobank |
Sainte‐Justine Children's Hospital University Health Center |
Quebec, Canada |
Godard et al,
47
O'Doherty and Burgess
59
|
Centre for Alaska Native Health Research (CANHR), United States |
Not available |
30% of eligible individuals (5000 eligible?) |
Population biobank |
Centre for Alaska Native Health Research (CANHR) |
Canada |
Boyer et al
60
|
Generation Scotland, United Kingdom |
Not available |
large family‐based cohort study (recruiting from age group 35‐55) with the eventual goal of collecting blood for the purpose of extracting DNA from 50 000 individuals |
Population biobank |
Partnership ‐ four Scottish universities & NHS Scotland |
Scotland, UK |
Haddow
38
|
GHC/UW, United States |
1994 |
1200 living participants; 1700 deceased |
Disease‐specific biobank |
eMERGE Network ‐ National Human Genome Research Institute (NHGRI) |
Seattle area, Washington, USA |
Lemke et al
61
|
Inherited Cancer Connect (ICCon) database, Australia |
2013 |
Not available |
Disease‐specific biobank |
Inherited Cancer Connect (ICCon) Partnership ‐ Cancer Council of New South Wales, Australia |
Australia |
Forrest et al
34
|
International HapMap Project, United States, Japan, China, Nigeria |
since 1980s |
Not available |
Population biobank |
International HapMap Consortium |
USA, Japan, China, Nigeria |
Rotimi et al,
61
Terry et al
37
|
Kaiser Permanente, United States |
2005 |
All diseases represented in patient population – 160 000 |
Population biobank |
eMERGE Network ‐ National Human Genome Research Institute (NHGRI) |
Northern California, USA |
Lemke et al
61
|
Kilifi Genetic Birth Cohort (KGBC), Kenya |
1989 |
aims to recruit 12 000 infants |
Disease‐specific biobank |
Kenya Medical Research Institute (KEMRI) ‐ Wellcome Trust Research Programme + MalariaGEN Consortium |
Kenya |
Marsh et al
63
|
Melbourne Genomics Health Alliance, Australia |
2014 |
Not available |
Population biobank |
Partnership ‐ 10 research organizations & hospitals |
Melbourne, Australia |
Watson
63
‐ Melbourne Genomics Health Alliance Community Advisory Group
65
|
Metastatic Breast Cancer Alliance Biobank, United States |
proposed biobank |
Not available |
Disease‐specific biobank |
Metastatic Breast Cancer Alliance |
USA |
Flowers et al
66
|
Multisite keloid study, Nigeria |
2005 |
4200 samples from participants from 103 families |
Disease‐specific biobank |
University of Connecticut Health Center (UCHC) General Clinical Research Center (GCRC) & LAUTECH in Osogbo and UCH in Ibadan |
Ibadan (Oyo State) and Osogbo (Osun State), Nigeria |
Olaitan et al
67
|
NUgene, United States |
2001 |
All diseases represented in patient population |
Population biobank |
Northwestern University ‐ University medical centre ‐ eMERGE Network ‐ National Human Genome Research Institute (NHGRI) |
Chicago area, Illinois, US |
Lemke et al
61
|
Nottingham Health Science Biobank, United Kingdom |
2011 |
The aim is to consent every patient at the time of first presentation at our hospital and those referred for surgery and treatment after diagnosis (ongoing) |
Population biobank |
Nottingham University NHS Hospitals Trust |
Nottingham, UK |
Mitchell et al,
3
Wilcox et al
21
|
Patients' Tumor Bank of Hope (PATH Biobank), Germany |
2002 |
Approximately 7500 patients have consented to be donors with seven sample source sites across Germany (ongoing) |
Disease‐specific biobank |
PATH Foundation, Germany |
Germany |
Mitchell et al
3
|
Peninsula Research Bank (PRB), United Kingdom |
Not available |
Not available |
Population biobank |
PenCLARHC: Peninsula Collaboration for Leadership in Applied Health Research and Care ‐ NIHR Exeter Clinical Research Facility (CRF) |
Exeter, UK |
Jenner et al
52
|
Personalized Medicine Research Project (PMRP), United States |
2002 |
All diseases represented in patient population – 20 000 |
Population biobank |
Marshfield Clinic ‐ Medical centre ‐ eMERGE Network ‐ National Human Genome Research Institute (NHGRI) |
Central Wisconsin, USA |
Lemke et al,
61
McCarty et al
12
|
PXE International Blood and Tissue Bank, United States |
1995 |
Not available |
Disease‐specific biobank |
PXE International |
USA |
Terry et al
43
|
Roswell Park Cancer Institute DataBank and Biorepository, United States |
Not available |
Not available |
Disease‐specific biobank |
Roswell Park Cancer Institute Alliance Foundation and NIH ‐ National Cancer Institute (NCI) |
Niagara Falls, NY, USA |
Erwin et al
68
|
Tasmania Biobank, Australia |
hypothesized biobank |
Not available |
Not available |
Not available |
Tasmania, Australia |
McWhirter et al,
50
Chalmers et al
4
|
Telethon Network of Genetic Biobanks (TNGB), Italy |
2008 |
90 000 biological samples representing approximately 850 distinct rare genetic diseases |
Disease‐specific biobank |
a consortium of 11 Italian non‐profits supported by the Telethon Foundation |
Italy |
Filocamo et al,
40
Baldo et al
41
|
The Breast Cancer Campaign Tissue Bank (BCCTB), United Kingdom |
2010 |
8230 samples |
Disease‐specific biobank |
Breast Cancer Now and 5 UK universities |
UK |
Wilcox et al
21
|
The Mayo Clinic Biobank, United States |
2009 |
The target goal is to obtain 50 000 biospecimens (ongoing) |
Population biobank |
Mayo Clinic, Rochester |
Minnesota, USA |
Lemke et al,
60
Olson et al,
36
Kimball et al,
16
Mitchell et al
3
|
UC Biobank, United States |
hypothesized biobank |
Not available |
Not available |
EngageUC (UC Davis, UC Irvine, UC Los Angeles, UC San Diego, and UC San Francisco) |
USA |
Dry et al
68
|
UK Biobank, United Kingdom |
2000 |
aims to enroll 500 000 participants aged 45‐69 for a period of several year |
Population biobank |
MRC/Wellcome Trust |
UK |
Levitt and Weldon,
70
Levitt,
56
People Science & Policy Ltd
71
|
BioVU, United States |
2007 |
All diseases represented in patient population |
Population biobank |
eMERGE Network ‐ National Human Genome Research Institute (NHGRI) |
Tennessee, USA |
Lemke et al
61
|
Wales Cancer Bank, United Kingdom |
2004 |
Currently 12 000 patients (ongoing) |
Disease‐specific biobank |
Cardiff University |
Wales, UK |
Mitchell et al,
3
NIHR Cancer Research Network (NCRN) report
72
|
Bossert et al
31
; Coors et al
32
; Lemke et al
33
|