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. 2020 May 6;23(4):759–788. doi: 10.1111/hex.13067
Name of the biobank (when available), country Date established Size Type of biobank Host organization Country or region References
80 biobanks in Western Australia [this group did not a formal name], Australia proposed biobank Not available Disease‐specific &. Population biobank Department of Health WA Perth, Western Australia, Australia Molster et al 35
Association Française contre les Myopathies, France 1958 Not available Disease‐specific biobank AFM (Association Francaise contre les Myopathies) financed by Telethon France Rabeharisoa 42
Alaska Area Specimen Bank (AASB), United States 1961 266 353 residual biologic specimens (serum, plasma, whole blood, tissue, bacterial cultures) from 83 841 persons who participated in research studies Population biobank Alaska Natives (Indian Self Determination Act (Public Law 93‐638 (1975)) Alaska, USA Parkinson et al 39
Avon Longitudinal Study of Parents and Children (ALPSAC), United Kingdom 1991‐2 Not available Population biobank University of Bristol (Medical Research Council, the Wellcome Trust) Bristol/Bath, UK Levitt 56
BC Biobank, Canada 2007 Not available Population biobank University Of British Columbia Department of Pathology and Laboratory Medicine, the Canadian Tissue Repository Network and the BC Cancer Agency British Columbia, Canada Walmsley, 22 Walmsley 51
BC Biolibrary, Canada 2007 Not available not a biobank, a network to integrate and improve access and quality of several provincial biobanks University of British Columbia British Columbia, Canada O'Doherty and Hawkins, 24 O'Doherty et al, 57 Secko, 73
CARTaGENE, Canada Not available aims to recruit a random sample of 50 000 individuals between the age of 25 and 75 Population biobank Sainte‐Justine Children's Hospital University Health Center Quebec, Canada Godard et al, 47 O'Doherty and Burgess 59
Centre for Alaska Native Health Research (CANHR), United States Not available 30% of eligible individuals (5000 eligible?) Population biobank Centre for Alaska Native Health Research (CANHR) Canada Boyer et al 60
Generation Scotland, United Kingdom Not available large family‐based cohort study (recruiting from age group 35‐55) with the eventual goal of collecting blood for the purpose of extracting DNA from 50 000 individuals Population biobank Partnership ‐ four Scottish universities & NHS Scotland Scotland, UK Haddow 38
GHC/UW, United States 1994 1200 living participants; 1700 deceased Disease‐specific biobank eMERGE Network ‐ National Human Genome Research Institute (NHGRI) Seattle area, Washington, USA Lemke et al 61
Inherited Cancer Connect (ICCon) database, Australia 2013 Not available Disease‐specific biobank Inherited Cancer Connect (ICCon) Partnership ‐ Cancer Council of New South Wales, Australia Australia Forrest et al 34
International HapMap Project, United States, Japan, China, Nigeria since 1980s Not available Population biobank International HapMap Consortium USA, Japan, China, Nigeria Rotimi et al, 61 Terry et al 37
Kaiser Permanente, United States 2005 All diseases represented in patient population – 160 000 Population biobank eMERGE Network ‐ National Human Genome Research Institute (NHGRI) Northern California, USA Lemke et al 61
Kilifi Genetic Birth Cohort (KGBC), Kenya 1989 aims to recruit 12 000 infants Disease‐specific biobank Kenya Medical Research Institute (KEMRI) ‐ Wellcome Trust Research Programme + MalariaGEN Consortium Kenya Marsh et al 63
Melbourne Genomics Health Alliance, Australia 2014 Not available Population biobank Partnership ‐ 10 research organizations & hospitals Melbourne, Australia Watson 63 ‐ Melbourne Genomics Health Alliance Community Advisory Group 65
Metastatic Breast Cancer Alliance Biobank, United States proposed biobank Not available Disease‐specific biobank Metastatic Breast Cancer Alliance USA Flowers et al 66
Multisite keloid study, Nigeria 2005 4200 samples from participants from 103 families Disease‐specific biobank University of Connecticut Health Center (UCHC) General Clinical Research Center (GCRC) & LAUTECH in Osogbo and UCH in Ibadan Ibadan (Oyo State) and Osogbo (Osun State), Nigeria Olaitan et al 67
NUgene, United States 2001 All diseases represented in patient population Population biobank Northwestern University ‐ University medical centre ‐ eMERGE Network ‐ National Human Genome Research Institute (NHGRI) Chicago area, Illinois, US Lemke et al 61
Nottingham Health Science Biobank, United Kingdom 2011 The aim is to consent every patient at the time of first presentation at our hospital and those referred for surgery and treatment after diagnosis (ongoing) Population biobank Nottingham University NHS Hospitals Trust Nottingham, UK Mitchell et al, 3 Wilcox et al 21
Patients' Tumor Bank of Hope (PATH Biobank), Germany 2002 Approximately 7500 patients have consented to be donors with seven sample source sites across Germany (ongoing) Disease‐specific biobank PATH Foundation, Germany Germany Mitchell et al 3
Peninsula Research Bank (PRB), United Kingdom Not available Not available Population biobank PenCLARHC: Peninsula Collaboration for Leadership in Applied Health Research and Care ‐ NIHR Exeter Clinical Research Facility (CRF) Exeter, UK Jenner et al 52
Personalized Medicine Research Project (PMRP), United States 2002 All diseases represented in patient population – 20 000 Population biobank Marshfield Clinic ‐ Medical centre ‐ eMERGE Network ‐ National Human Genome Research Institute (NHGRI) Central Wisconsin, USA Lemke et al, 61 McCarty et al 12
PXE International Blood and Tissue Bank, United States 1995 Not available Disease‐specific biobank PXE International USA Terry et al 43
Roswell Park Cancer Institute DataBank and Biorepository, United States Not available Not available Disease‐specific biobank Roswell Park Cancer Institute Alliance Foundation and NIH ‐ National Cancer Institute (NCI) Niagara Falls, NY, USA Erwin et al 68
Tasmania Biobank, Australia hypothesized biobank Not available Not available Not available Tasmania, Australia McWhirter et al, 50 Chalmers et al 4
Telethon Network of Genetic Biobanks (TNGB), Italy 2008 90 000 biological samples representing approximately 850 distinct rare genetic diseases Disease‐specific biobank a consortium of 11 Italian non‐profits supported by the Telethon Foundation Italy Filocamo et al, 40 Baldo et al 41
The Breast Cancer Campaign Tissue Bank (BCCTB), United Kingdom 2010 8230 samples Disease‐specific biobank Breast Cancer Now and 5 UK universities UK Wilcox et al 21
The Mayo Clinic Biobank, United States 2009 The target goal is to obtain 50 000 biospecimens (ongoing) Population biobank Mayo Clinic, Rochester Minnesota, USA Lemke et al, 60 Olson et al, 36 Kimball et al, 16 Mitchell et al 3
UC Biobank, United States hypothesized biobank Not available Not available EngageUC (UC Davis, UC Irvine, UC Los Angeles, UC San Diego, and UC San Francisco) USA Dry et al 68
UK Biobank, United Kingdom 2000 aims to enroll 500 000 participants aged 45‐69 for a period of several year Population biobank MRC/Wellcome Trust UK Levitt and Weldon, 70 Levitt, 56 People Science & Policy Ltd 71
BioVU, United States 2007 All diseases represented in patient population Population biobank eMERGE Network ‐ National Human Genome Research Institute (NHGRI) Tennessee, USA Lemke et al 61
Wales Cancer Bank, United Kingdom 2004 Currently 12 000 patients (ongoing) Disease‐specific biobank Cardiff University Wales, UK Mitchell et al, 3 NIHR Cancer Research Network (NCRN) report 72
Bossert et al 31 ; Coors et al 32 ; Lemke et al 33