Skip to main content
. Author manuscript; available in PMC: 2021 Sep 1.
Published in final edited form as: Patient Educ Couns. 2020 Mar 19;103(9):1677–1691. doi: 10.1016/j.pec.2020.03.014

Table 3.

Summary of Selected Papers

Reference Aims Theory Study Design Setting Sample Size (N) Intervention Outcome measures and results Theme Video Content, duration
Aslaks on, et al. (2019) (13) To evaluate if ACP videos could be integrated into surgical care and if patients would engage in perioperative ACP discussions after the intervention None RCT with recorded interviews Single-center, Tertiary care, Academic Hospital-Across US 92 patients undergoing major cancer surgery I= 45 C= 47 I: ACP video featuring a patient and her family undergoing preoperative and postoperative issues C: Informational video about surgery program No difference in discussion of ACP content nor in patient-centeredness between groups HADS remained stable Participants categorized video as helpful 41% (vs. 39%) Effect on preference and ACP Patient and family discussing preparing for, undergoing and recovering from major surgery and recommen ding ACP 6-minutes
Brown, et al. (1999) (14) To assess if the addition of video tape would stimulate ACP completion more than written materials alone Communication theory: Video increases knowledge allowing informed consent. RCT Community dwelling – in Colora do 1247 patients randomized I = 619 C = 638 I: Peace of Mind videotape + Written-materials C: Written-materials only ACP completion after 3 months 34% of study population had at least one ACP, compared with 20% at baseline. No difference found between the groups. Effect on preference and ACP 9 interviews of patients and families describing their feelings and choices about ACP unknown
Capewell, et al. (2010) (38) To determine the feasibility of evaluating a DVD based educational intervention among cancer patients System theory: Barriers to cancer pain include patient, professional and HC system levels. Prospective Community dwelling – in United Kingdom 15 patients and 10 caregivers Baseline (V1): 6-min DVD-based educational video with researcher. Participants received a takehome DVD copy and leaflet. At 5–10 days (V2): Second visit/questi onnaire At 25–35 days (V3): Third visit/questionnaire Patient pain questionnaire (PPQ) Reduction of 18% between V1 and the final assessment V2 or V3 (p=0.007) No significant improvements between V2 and V3(p= 0.067) Brief pain inventory (BPI) Reduction of 9.6% between V1 and V2 (p=0.0 2) Hospital anxiety/Depression Scale (HAD) No significant changes Family Pain questionnaire (FPQ) Knowledge subscale improved by 42% between V1 and V3. Information aid Multi-disciplinary palliative care staff talking about cancer pain and opioid use 6-minutes
Chung et al. (2016) (39) To find a development strategy for a culturally credible video with emphasis on Hispanic hospice patients Communication theory: Communication between patient and provider is best method to deliver information to Latinos. Video can help clinicians communicate with Latinos. Focus group Comnunity dwelling - Hospice - in California 78 Latino caregivers: Phase 2 = 47 Phase 3 = 12 I: Video about a patient with Alzheimer’s disease, her family caregivers and healthcare providers Video’s educational effectiveness, strength and weaknesses Phase 2: Request for more powerful shots that facilitate virtual engagement and for additional information about hospice enrollment. Phase 3: Caregivers stated that video will increase awareness of hospice availability Satisfaction and acceptance of video Latino family’s personal testimonial of caring for Mexican-American with late stage Alzheimer Dementia and bilingual interdisciplinary hospice team member stories about hospice <10-minutes
Cohen, et al. (2018) (15) To understand the relationship of proxy level of care preferences and documented ACP in the EVINCE cohort; To evaluate how does ACP video improve concordance between care preferences and patterns of advance directives Self-efficacy theory Cluster RCT Multi-center, Nursing home facilities - in Boston 328 resident-proxydyads I= 172 C=156 I: description + 12- minutes video on tablet showed to proxy C: Description of three levels of care options Concordance between proxy level of care preferences and ACP documented in residents charts When proxies stated intensive care preference, 58% of residents’ charts were deemed to be concordant with that preference; When comfort care was preferred, residents in the intervention arm were more likely to have directives concordant with preference compared to control (AOR= 2.48, CI 1.01-6.09) Effect on preference and ACP Visual images of the 3-part goals of care choices in advance dementia: life prolonging care in the ICU with simulated resuscitation, basic medical care in medical ward, and comfort care on home hospice 12-minutes
Cruz-Oliver, et al. (2016) (35) To assess the effectiveness of educating Latinos using telenovel as about CG stress and improve their attitudes towards using EOL care None Pre-posttest survey to CGs Community dwelling - Across US 145 caregivers Audiovisual Intervention using telenovela and Power Point presentation Knowledge and Attitudes Post-video higher awareness of CG stress and were more willing to accept help from hospice, social work, adult day care and chore worker. 6-month post-intervention survey/follow-up 91% said they most probably intended to use these services Informtion aid Bilingual telenovela about a caregiver struggling to care for her father with dementia and how healthcare providers help her keep patient at home 15-minutes
Cruz-Oliver, et al. (2018) (36) To identify the motives of CGs to participat e in educatio nal intervent ion and to evaluate their learning outcome None Pre-posttest survey to CGs Community dwelling - Across US 145 caregivers Telenovela and Power Point presentation Pretest 2-open ended questions about expected learning Most (75%) expected to learn how to help the sick Post-test learning assessment Participants left the training with better understanding about how to accept help (45%) and the services available (46%) Information aid Bilingual telenovela about a caregiver struggling to care for her father with dementia and how healthcare providers help her keep patient at home 15-minutes
Deep, et al. (2010) (16) To determine if the video images of a patient with advanced dementia impact informed decisions about future care. Self-efficacy theory: Video communication leads to increased knowledge and self-efficacy. Cross - sectional structured interviews Outpatient clinic - in Boston 120 patients I: A 2-minute documentary video of a patient with advanced dementia C: Verbal description Post-video reasons for change in choice of care: Medical care inherently good, avoid suffering, Inadequate QOL, Not become a burden to family, futile treatment, preserve life Post-video change in preference of care 18/25 change d from life-prolon ging to comfort; 16/22 changed from limited to comfort t; 3 themes on the impact of the video: Value of the visual as oppose d to words, imparti ng knowle dge about experie nce & emotio nal reactio n to video. Effect on preference and ACP Two daughters talking to the patient with dementia 2-minutes
El-Jawahri, et al. (2010) (17) To determine the preference of care of cancer patients after a video intervention Communie ation theory: These interventions maybe difficult for patients to imaging using verbal description alone. Video images have been shown to improve understanding of complex health info and inform decision-making. RCT Oncology elinie - in Boston 50 glioma patients I= 23 C= 27 I: 6-min video plus verbal narrative C: Verbal narrative GOC preference of care assessment 91% of participants in the video group preferred comfort (life-preserving 0%, basic 4%, and uncertain 4%) Effect on preference and ACP Visual images of the 3-part goals of care framework in advance cancer: life prolonging care in the ICU with simulated resuscitation, basic medical care in medical ward, and comfort care on home hospice 6-minutes
El-Jawahri, et al. (2016) (18) To assess the effectiveness of a video-assisted intervention compared to a verbal description in patients choosing comfort care Communication theory: Video-assisted approach was designed to stimulate and supplement the conversation with clinicians. Patients can be empowered to engage clinicians in ACP, strengthening discussions with providers. RCT Single-Center Aeade mie Hospital - Aeross US 246 patients > 64 yrs old: I = 123 C = 123 I: Verbal Narrative plus 6-minute GOC video for patients with advanced heart failure C: Verbal Description only Control arm GOC preferences 51% participants in the video intervention preferred comfort care, to forgo CPR/Intubation and had higher ACP knowledge Follow up conversation At 3 month, 61% (vs. 15% in control) had GOC conversation with health care provider Effect on preference and ACP Doctor introduces ACP and 3-part goals of care framework, followed by simulated code with clinicians conducting CPR and intubation 6-minutes
Epstein, et al. (2015) (19) To assess the impressions of a CPR educational video for cancer patients Communication theory Interview of participants in a RCT Outpatient oncology clinic - in New York 54 patients I= 29 C= 25 I: Educational 3-minutes video about CPR C: Narrative description Answers to open-ended question about post-intervention concerns Advance care planning should be started early, information about the process of CPR affirmed values, participants were apprehensive about ACP but wanted to discuss it, gaps in medical knowledge emerged, CPR information was helpful/accept able, physicians should be involve d in ACP. While sometimes difficult to discuss, ACP was deemed a helpful and desired process. They believed that the process ideally should be begin early, involve clinicians, and that video educati on is an appropriate and affirming conversation starter. Effect on preference and ACP Visual images of the 3-part goals of care framework in advance cancer: life prolonging care in the ICU with simulated resuscitation, basic medical care in medical ward, and comfort care on home hospice 3-minutes
Epstein, et al. (2013) (20) To compare the effect of a video intervention versus a narrative description to enhance the completion of ACP and documented discussio n about desired EOL care Communication theory RCT Single-center, Out-patient oncology clinic - in New York 57 cancer patients I= 30 C= 26 I: Short 3-min CPR and mechanical ventilation video C: Narrative description of CPR - script identical to the one heard in the video ACP completion 40% (12/30) of patients in the video arm completed ACP vs. 15% (4/26) in narrative arm (p=.07) Preferences for CPR changed significantly in the video arm (p=.02 3) and not in the narrative arm Effect on preference and ACP Visual images of the 3-part goals of care framework in advance cancer: life prolonging care in the ICU with simulated resuscitation, basic medical care in medical ward, and comfort care on home hospice 3-minutes
Gallagher-Thompson, et al. (2010) (27) To determine if a Skill-DVD compared to Educational-DVD about dementia patients would be effective in reducing depressive symptoms & stress related to CG (CES-D & pos affect) of Chinese dementia patients Self-efficacy theory: Build skills and self-efficacy to improve outcomes RCT Community dwelling - Across US 76 caregivers: I = 40 C=36 I: Skill training DVD intervention (SKDVD) C: Education DVD intervention (EDDVD) CES-D decreased depressive symptoms in both groups post video Positive Affect subscale score increased significantly in skill-DVD (p=0.0 01) RMBPC Stress/negative reaction toward patient behavior decreased more in the skill-DVD group (p=0.0 19) Emotional support Narrator explains information about dementia, caregiver stress, how to communicate and access resources in Mandarin 2.5 hours
Gant, et al. (2007) (26) To determine the efficacy of video intervention in reducing psychosocial distress in male caregivers None RCT of male caregivers Community dwelling - Urban Midwest 32 male caregivers: I =17 C =15 I: Video/Workbook/telephone coaching C: 37-page booklet Basic Dementia Care Guide + biweekly phone calls RMBPC Significant reduction in caregiver upset and annoyance across both the booklet/check-in calls and the video/coaching intervention Video intervention greater efficacy not demonstrated Self-efficacy Scale, Positive/negative emotions Greater efficacy of video intervention not demonstrated Emotional support Unknown specific content, but it was based on Dementia Caregiving Skills Program Unknown
Hanson, et al. (2017) (33) To verify if GOC video intervention can improve communication and decision making as well as acceptance to palliative care for advance dementia patients and family decision makers None Cluster RCT Community dwelling - nursing home - in North Carolina I = 151 dyads C = 151 dyads I: Family decision makers had two-part intervention consisting of an 18-min. Goals of Care (GOC) video plus a discussion with the nursing home care team. C: Informational video and Usual care plan Quality of communication score Improv ed End-of-life communication (QOC) scores compar ed to control at 3 months and at end of the study Concordance with clinicians GOC Greater concor dance with providers ACP problem score No difference in ACP problem score Quality of Palliative Care Hospital transfer and survival time did not differ significantly Decision aid On dementia, goals of prolonging life, supporting function, or improving comfort, and how to prioritize goals 18-minutes
Kozlov, et al. (2017) (37) To evaluate if laypersons’ knowledge about palliative care improve with brief, self-administrated educational intervention compared to written page Communication theory: Patient knowledge of health services drives utilization Patients are not able to make fully informed treatment decisions when they are unaware of all the care options available. RCT Multi-Center both Acade mic & Community Hospitals - in Missouri 152 laypersons I = 77 C = 76 I1: Video Intervention about palliative care C1: Information page intervention I2: Diet video C2: Information page control Palliative care Knowledge Scale & Mean confidence ratings (PaCKs) No significant difference was found in the knowledge scores and confidence in knowledge between the video-intervention and the information-intervention groups. Information aid Doctor giving information about palliative care, scenes of doctor interacting with patients 3-minutes
Lambing, et al. (2006) (43) To evaluate how can seriously ill patients that received a CD-ROM intervent ion feel with the educational program Self-efficacy theory Prospective pilot Single-center Academic Hospital - in Michig an 50 patients diagnosed with life- limiting illness Pre-intervention questionnaire, ‘Completin g a Life’ CD-ROM, Post-intervention questionnaire Comfort level with information provided 90% somewhat comfor table using CD ROM 98% found it easy to use Satisfaction and acceptance of video Information in taking charge, finding comfort, reaching closure and personal stories of patients with terminal illness 1 hour
Leow and Chan (2016) (42) To evaluate the perception of CGs of advanced cancer patients after receiving a video intervention, having telephone follow-ups and participating in online forum Communieation theory Semi-struetured face-to-face interviews Single-center Home Hospice - in Singap ore 12 caregivers of patients with advanced cancer I: 6-week psychoeducational intervention ‘Caring for the CG’ program that includes: 1 23-min video, 2-Telephone follow-up 3-Online social support 2 open ended questions about perception and most/least useful component Most (10/12) participants found it most useful; Most particip ants said they ‘identify with the scenes in the video’ relating to the frustrations the CG in the video was experiencing Satisfaction and acceptance of video Unknown specific content, but it is based on Caring for the Caregiver Program psychoeducational intervention 23-minutes
Matsui (2010) (21) To find the preference of care of Japanese older adults after an educational program None Quasi-experimental Community dwelling - in Japan 121 adults (>65 years old) I: 90-min educational program consisting of a lecture, video about EOL care in hospice and discussion C: Handouts Post-video life sustaining treatment preferences Regarding artificial nutrition changed from 46% to 25% in the category “leave it to physicians” Attitudes about Advanced Directives Positive attitudes about Advanced Directives increased 1 month post-video from 43% to 52% (p=.02 4) Acceptability Program acceptance was higher in the intervention group (8.6 vs. 7.5, p=.011 ) 1-mo post video discussion with physician about preferences of care 49% (from 29%)stated that they would not prefer artificial nutrition and this remained 1 month follow-up (p<.010) Effect on preference and ACP The video introduced public preferences for life sustaining treatment, actual EOL care in a hospice at home and in the NH and living wills produce by the Japan Society for Dying with Dignity 90-minutes
McIlvennan, et al. (2018) (32) To determine if a DT-LVAD could be effective in improving shared decision making for caregivers Communication theory Stepped-wedge RCT Multi-Center both Academic & Comm unity Hospitals - Across US 182 caregivers I=71 C=111 I: 1-Delivery of an in-person 2.5h clinician-directed decision support training of local staff; 2-Integration of 26-min video and 8-page pamphlet about decision aids C: Formal industry pamphlets, videos and program-specific LVAD documents Decision Quality-Knowledge no change in quality - knowledge between groups Values-choice concordance At 1-month concordance between values and treatment choice was higher in the intervention group (p=0.0 26) but not at 6mo (p=0.0 8) Decision aid Decision Aid for patients and their caregivers considering DT-LVAD 26-minutes
Pensak, et al. (2017) (40) To determine the acceptability, anticipated usability and feasibility of Pep-Pal = a mobilized adapated version of PEPRR=Psycho-Educational, Paced Respiration and Relaxation Program Self-efficacy theory Focus groups and individual interviews Single-center, Academic Hospital - in Colora do Focus group= 6 Interview= 9 Focus group of Step 2 with 6 CGs: Pep-Pal 10-min mock-up video Interview of Step 2 with 9 CGs: Pep-pal videos Focus group quotes based on 5 outcomes: Majority preferred combination of animated and human delivery, suggested to include more positive examples, could use video in the waiting room, include breathing exercises, and that a website will be great. Interviews subthemes: Distractions, validating the CG experience, combination of 1:1 support, no difficulty, an acceptable way to get support prognosis introduction early on diagnosis Satisfaction and acceptance of video Introduction to stress management, mind-body connection, how our thoughts can lead to stress, strategies for maintaining energy and stamina, comping with uncertainty, managing relations and coping with your needs, getting the support you need, and improving intimacy. 9 videos of 10-minutes each
Schofie, et al. (2007) (29) To assess the effect of this DVD on cancer patients’ pretreatment anxiety, informational needs and self-efficacy None Quasi-experimental Single-center, Oncology clinic – in Australia 100 patients with cancer (>18 years old) I: Take-home DVD about receiving chemother apy and self-management of common side effects C: Usual care Satisfaction Intervention group more satisfied (p=0.0 26) HADS No significant difference between the usual care and the intervention groups Self-perceived palliative vs. Self-perceived curative patients Curative patients rated themselves as more confident maintaining activity / independence, stress management, accepting cancer/maintaining positive attitude affective regulation and seeking social support Emotional support Focused on preparation for receiving chemotherapy and self-management of eight common side effects 25-minutes
Steffen (2000) (28) To evaluate the usefulnes s of a CG anger-management intervention ingroup or at home Self-efficacy theory RCT Community-dwelling - in Boston 33 caregivers of dementia patients I1= 10 I2= 9 C= 9 I1: 1-Home-based viewing of an anger-management video segments for the next 8 weeks and a workbook plus 20- min weekly telephone checks I2: Class-based meeting with a trained facilitator C: Wait-list participants Anger intensity anger scores for the two intervention conditions were each significantly lower than in the posttre atment Wait-list group (p<.01) BDI Mean BDI for the home-based viewin g condition was significantly different than waitlist (p<.01) Emotional support Narrator present specific components, brief interviews with caregiver and an enacted role-play of assertion skills 4 hours
Steffen and Gant (2015) (30) To evaluate the effect of a basic education/telephone support condition vs. video instruction/telephone support condition on reducing negative behaviors, depression, and negative moods None RCT - single blind Community dwelling – Across US 74 caregivers I=33 C=41 I: Video instruction/workbook/telephone behavioral coaching C: Basic education/telephone support RMBPC Behavioral upset significantly reduced with medium effect at 10 weeks, but at 6-months post intervention remain similar between both groups BDI-II Greater efficacy of the behavioral coaching in reducing depressive symptoms (p<0.0 5) Negative mood Lower level of negativ e mood and anxiety in the behavioral coaching group Emotional support Narrator explains behavioral activation, management of disruptive dementia behaviors, relaxation during caregiving and self-efficacy 5 hours
Thomas, et al. (2015) (41) The determine how a multimedia DVD for CGs meet informational needs and provide peer support Self-efficacy theory Focus group and interviews with caregivers Community dwelling – in Australia 29 caregivers CGs received a DVD multimedia sent by mail and a questionnaire to complete. Rating scale on helpfulness, on satisfaction and how well they related to media CGs stated they were satisfied, that the DVD was a positive tool (realistic, informative, interesting, inspiring) to introduced palliative care to caregivers CGs related well with the film Satisfaction and accept ance of video Interview about self-care, social support, palliative care, EOL discussions and bereavement. Unknown
Toraya (2014) (22) To assess if an educational AD video is effective in increasing patient understanding regarding discussion of future HC wishes and AD documents Communication theory: communication is an important part of ACP and videos facilitate communication. Pre-post survey Single-center community Hospital outpatient clinic – in Washington 45 participants from outpatient clinics I: 12-minute video to encourage discussion about Advanced Directives Changes in future HC wishes 58% said video changed their HC wishes Rating of the video helpfulness Mean rank of video helpful ness was 8.8 (0–10) Effect on preference and ACP Video encourages discussions about future healthcare wishes and ACP 12-minutes
Volandes, et al. (2008) (23) To assess the influence of Health Literacy as opposed to race in EOL care preferences after video intervention Communication theory: Health literacy is barrier to communication and educational video can assist Cross sectional questionnaire Outpatient clinic - Urban and Suburb an Boston 144 participants/patients AA=80 W=64 I: Verbal description followed by 2-min video of a patient with dementia. Participant s were evaluated on their health Literacy Tool used to measure health literacy of each participants Preferences of care after hearing verbal description 67% of low health literacy participants preferred aggressive care HL remained significant and independent predictor of preferences for care (OR 7.1, 95 0 CI 2.1-24.2) Comparison with preferences of care after video Majority of subjects across both races and all health literacy groups chose comfort care after viewing the video. The distribution of subject’s preferences changed significantly (p=0.0001). Effect on preference and ACP Narrator describes the salient features of advanced dementia. 2-minutes
Volandes, et al. (2008) (25) To determine if patients’ preferences for EOL care can be independently predicted by educational level after hearing verbal description of advance dementia To evaluate a video decision aid about advance dementia effect on communication barriers posed by limited educational level Communication theory Cross sectional - questionnaire Outpatient clinic - in Boston 104 Latino patients I: Verbal description about preferences of care followed by 2-min video of a patient with dementia Preferences of care Pre/post video intervention Before video 40% preferred comfort care and after the video 75% preferred comfor t care After watching the video differences by education disappeared Effect on preference and ACP Narrator describes the salient features of advanced dementia. 2-minutes
Volandes, et al. (2009) (31) To assess if patients & surrogates that viewed a video decision-support tool for advance dementia concur more about EOL preferences compared to those receiving a verbal description Communication theory: The video engages and allows both patients/surrogates to envision future health states in a manner not captured with verbal communication. RCT Single-Center Community Hospital - in Boston 14 patient-surrogate dyads: I= 8 dyads C=6 dyads I: Verbal narrative plus viewing a 2-minute video decision-support tool C: Verbal narrative of advanced dementia Surrogates preferences for their loved one There was 100% concordance of surrogates and patients preferences Knowledge scores for dyad Increased for both groups, but higher in the intervention Decision aid Two daughters talking to the patient with dementia 2-minutes
Volandes, et al. (2011) (34) To evaluate if rural patients would be more likely to prefer comfort care after a video decision aid Communication theory-Video can communicate informatio n to support decision making RCT Outpatient clinic - Rural Louisiana 77 advanced dementia patients I=33 C=43 I: Verbal narrative followed by a Video decision aid C: Verbal description only Difference in proportions of subjects preferring comfort care between the groups 91% in the video group vs. 72% in the verbal description group (p=.04 7) Factors associated with preference for comfort care white, female, video arm and higher HL (P<.05) Decision aid Two daughters talking to female patient with advance dementia and visual images of the 3-part goals of care framework : life prolonging care in the ICU with simulated resuscitation, basic medical care in medical ward, and comfort care on home hospice 6-minutes
Volandes, et al. (2012) (24) To assess the effect of reinforcing verbal description with video in order to improve knowledge about CPR; To determine if there is a difference on stated preferences after watching the video Communication theory Cross sectional Oncology clinic - in New York 80 patients with advanced cancer I: Verbal description followed by 6-min video describing 3 choices of HC (life-prolonging, basic, comfort care) Pre/post: Preference of Care After verbal description, 36% preferred comfort care Did not change significantly after viewing the video CPR/ventilator preferences CPR/v entilator preferences changed significantly (61% pre, 71% post video, p=0.03) Effect on preference and ACP Visual images of the 3-part goals of care choices of health care in advance cancer: life prolonging care in the ICU with simulated resuscitation, basic medical care in medical ward, and comfort care on home hospice 6-minutes

RTC = Randomized Controlled Trial, I = Intervention, C = Control, CG = caregiver, CES-D = Center for Epidemiological studies Depression Scale, RMBPC=revised memory and behavior problems checklist, GOC = Goals of care, HAD= Hospital Anxiety and Depression Scale, PPQ= Patient Pain Questionnaire, BPI= Brief Pain Inventory, QOL = Quality of Life, AA= African Americans, W= Whites, REALM= Rapid Estimate of Adult Literacy in Medicine tool, HL= Health Literacy, HC= Healthcare, CG= caregiver, BDI-II= Beck Depression Inventory over the past two weeks, LVAD= Left Ventricular Assist Device, ACP= Advanced Care Planning, EOL= End-of-life, ACP= Advance Care Planning, US= United States