Table 4.
Parents’ attitudes toward IEDs childhood genetic testing (n＝359)
| Items | Strongly agree/agree n (%) | Mean score a |
|---|---|---|
| Favorable attitudes | 19.27 ± 3.29 | |
| 1. I think the development of DNA research is hopeful for the treatment of diseases. | 238 (66.3) | 3.88 ± 0.90 |
| 2. I approve of using DNA‐testing for early detection of diseases. | 251 (69.9) | 3.95 ± 0.86 |
| 3. I would inform my spouse about the results of a DNA‐test for a specific disease. | 317 (88.3) | 4.21 ± 0.74 |
| 4. I want to know whether my children’ disease is hereditary. | 310 (86.4) | 4.21 ± 0.77 |
| 5. I would inform my siblings about the results of a DNA‐test for a specific disease. | 133 (37.0) | 3.03 ± 1.13 |
| Reserved attitudes | 22.04 ± 4.78 | |
| 6. I worry about the consequences of genetic testing for being able to take out my children's insurance. | 124 (34.5) | 3.23 ± 0.95 |
| 7. As long as a disease cannot be treated, I do not want my children undertake genetic testing. | 71 (20.0) | 2.61 ± 1.10 |
| 8. I worry about the consequences of DNA‐testing for the chances of finding a job. | 86 (24.0) | 2.94 ± 1.00 |
| 9. Telling my children the results of genetic testing will affect their physical and psychological health. | 116 (32.3) | 3.01 ± 1.04 |
| 10. The positive results of children's genetic testing will affect family relationship (e.g., Spousal relationship, mother‐in‐law, and daughter‐in‐law). | 93 (25.9) | 2.84 ± 1.05 |
| 11. The results of genetic testing would have an influence on my decision to have another child. | 183 (51.0) | 3.42 ± 1.08 |
| 12. If genetic testing is free of charge, my children will take the test. | 260 (72.4) | 4.00 ± 0.93 |
Abbreviation: IEDs, inherited eye diseases.
a
Mean score (items were answered on a 5‐point scale: 1 = totally disagree to 5 = totally agree).