TABLE 1.
Semi‐structured interview sample characteristics
| Participant n = 14 | Study partner n = 11 | |
|---|---|---|
| Age, mean years (range) | 77 (64–100) | 73 (54–85) |
| Education, mean years (range) | 16 (12–19) | 15 (12–20) |
| Mean years at ADRC (range) | 7.67 (1–20) | 6.31 (1–16) |
| Sex | ||
| Female n (%) | 8 (57.1) | 7 (63.6) |
| Male n (%) | 6 (42.9) | 4 (36.4) |
| Race, Black n (%) | 14 (100) | 11 (100) |
| Place of residence* | ||
| Urban, n (%) | 10 (71.4) | 5 (45.5) |
| Suburban, n (%) | 4 (28.6) | 6 (54.5) |
| Relationship, patient/study partner | ||
| Spouse | 6 (43) | 6 (55) |
| Friend | 3 (21) | 2 (18) |
| Sibling | 2 (14) | 1 (9) |
| Other † | 3 (21) | 2 (18) |
| Diagnosis | ||
| No cognitive diagnosis | 8 (57) | n/a |
| MCI | 3 (21) | |
| Alzheimer's disease | 3 (21) | |
| Referral source to ADRC | ||
| Outreach | 4 (29) | 2 (18) |
| Doctor's office | 3 (21) | 4 (36) |
| Family | 2 (14) | 0 (0) |
| Other research studies | 2 (14) | 1 (9) |
| Unknown by participant | 2 (14) | 3 (27) |
| Other | 1 (7) | 1 (9) |
Abbreviations: ADRC, Alzheimer's Disease Research Center; MCI, mild cognitive impairment.
*
Distance from the ADRC ranged from 4 to 157 miles.
†
Other relationships include one uncle, one adult child, two cousins, and one grandmother.