Table 3.
Council members’ perceptions about their experience of involvement in the councils
| Patients’ Perceptions (N = 22) | |
| Patients’ confidence in their ability to identify CBPCP priorities to improve services and QIa, median (min-max) | |
| At the beginning of the study (N = 22) | 5 (1–10) |
| At the end of the study (N = 15) | 8 (4–9) |
| Three main motives of patients to engage in the council at the beginning, n (%) | |
| To help staff to improve healthcare and services | 22 (100.0) |
| To improve patient experience of care in the CBPCP | 20 (78.0) |
| To improve relevance of research projects | 17 (54.0) |
| Patients satisfied with the training (in first meeting) (N = 21), n (%) | |
| Definitely satisfied | 21 (100.0) |
| Patients perceiving training (in first meeting) as useful for their participation (N = 21), n (%) | |
| Totally agree | 20 (95.0) |
| Not sure | 1 (5.0) |
| Barriers to participation for patients, n (%) | |
| Time constraints | 14 (60.0) |
| Involvement in work or family activities | 11 (50.0) |
| No perceived impact on services to CPBCP patients | 11 (50.0) |
| No perceived impact on patient experience in the CPBCP | 11 (50.0) |
| No funding / financial compensation | 1 (4.5) |
| Patients’ perception that councils had an impact on the CBPCP at the end of the project (N = 15), n (%) | |
| Yes | 10 (66.7) |
| No | 0 (0.0) |
| Don’t know | 5 (33.3) |
| Patients’ willingness to participate again in such a council (N = 15), n (%) | |
| Yes | 12 (80.0) |
| No | 2 (13.3) |
| Not sure | 1 (6.7) |
| Patients satisfactiona regarding their participation in the council (N = 15), median (min-max) | |
| Overall satisfaction | 8 (6–10) |
| Interactions with other patients | 8 (5–10) |
| Interactions with the clinician | 8 (8–10) |
| Interactions with the manager | 9 (7–10) |
| Interactions with the patient-expert facilitators | 9 (8–10) |
| Clinicians and managers’ perceptions (N = 4) | |
| Three main motives of clinicians and managers to engage in the councils, n (%) | |
| To improve patient experience of care in the CBPCP | 4 (100.0) |
| To improve practices of CBPCP health professionals | 4 (100.0) |
| To contribute to developing new scientific knowledge | 4 (100.0) |
| Barriers to participation for clinicians and managers, n (%) | |
| Time constraints | 4 (100.0) |
| No perceived impact on services to CPBCP patients | 1 (25.0) |
| Lack of confidence in researchers | 2 (50.0) |
| No funding / financial compensation | 0 (0.0) |
POR Patient Oriented Research, QI Quality Improvement, M Men, W Women, P patient, CBPCP Community-based primary care practice, A CBPCP-A, B CBPCP-B
aOn a 0 to 10 scale, highest values meaning high perception