Table 4.

Needs identified in State Newborn Screening Program Site Reviews: Information System and Information Technology Needs themes identified (Number of times reported in site review report, individual interview, and pre-site review forms).

Category	Sub-Theme
ST Follow-Up LIMS System/Follow-Up Reporting System Needs (5/7 reports, 1/3 interviews, 2/7 pre-site review forms)
	Utilize automated reports vs. relying on manual documentation
	Share reports from follow-up with laboratory, including actions taken
	Provide follow-up staff with VPN access for weekend/holiday/after-hours staff
Laboratory LIMS System Needs (5/7 reports, 2/3 interviews, 2/7 pre-site review forms)
	Identify resources to assist with generating reports
	Develop a system for LIMS to track refusals
	Fully utilize LIMS system and LIMS features
System and/or integrations need to be updated (4/7 reports, 0/3 interviews, 0/7 pre-site review forms)
LIMS features not designed for laboratory assessments (4/7 reports, 2/3 interviews, 0/7 pre-site review forms)
Ensure newborns are screened (5/7 reports, 0/3 interviews, 0/7 pre-site review forms)
	Develop system to track refusals & engage in QA/QC around refusals
	Develop system to track missing specimens and lost to follow-up