Table 1.
Demographic characteristics and social determinants of health for SCDIC Patient Needs Assessment Respondents
| Sought SCD-related ED Care within the last 12 months1 (n=385) | Did not seek SCD-related ED care within the last 12 months (n=123) | Total2 (N=516) | |
|---|---|---|---|
| Age, Median (IQR) | 29 (22-35) | 23 (17-32) | 28 (20-34) |
| Sex, N (column %) | |||
| Male | 41.6% | 50.4% | 43.2% |
| Female | 56.6% | 48.8% | 54.7% |
| Don’t know/Prefer not to respond | 1.8% | 0.8% | 2.2% |
| SCD Genotype, N (column %) | |||
| Hb SS | 70.1% | 58.5% | 66.9% |
| Hb Sβ0 Thalassemia | 1.6% | 1.6% | 1.6% |
| Hb SC | 19.0% | 26.8% | 20.5% |
| Hb Sβ + Thalassemia | 3.4% | 7.3% | 4.3% |
| Other/Don’t know/Prefer not to respond2 | 6.0% | 5.7% | 6.8% |
| Race, N (column %) | |||
| Black/African American | 94.5% | 97.6% | 94.6% |
| Other race 3 | 3.2% | 0.8% | 2.7% |
| Don’t know/Prefer not to respond | 2.3% | 1.6% | 2.7% |
| Ethnicity, N (column %) | |||
| Non-Hispanic or Latino | 91.4% | 93.5% | 90.9% |
| Hispanic or Latino | 3.1% | 4.1% | 3.7% |
| Don’t know/Prefer not to respond | 5.5% | 2.4% | 5.4% |
| Highest level of education attained, N (column %) | |||
| Less than high school diploma/GED | 22.9% | 34.1% | 25.4% |
| High school diploma / GED | 22.6% | 19.5% | 22.1% |
| Some college, no degree | 26.8% | 14.6% | 23.4% |
| Associate degree or higher | 24.2% | 27.6% | 24.8% |
| Don’t know/Prefer not to respond | 3.6% | 4.1% | 4.3% |
| Occupational status, N (column %) | |||
| Disabled (permanent or temporary) | 34.0% | 8.9% | 27.9% |
| Employed (full time or part time) | 24.4% | 30.9% | 25.6% |
| Student | 19.2% | 30.9% | 21.7% |
| Not working, looking for a job | 9.1% | 19.5% | 11.6% |
| Not working, not looking for a job4 | 6.5% | 5.7% | 6.4% |
| Other/Prefer not to respond | 6.8% | 4.1% | 6.8% |
| Annual household income, N (column %) | |||
| Less than $15,000 | 46.2% | 32.5% | 43.0% |
| $15,000 - $29,000 | 17.1% | 12.2% | 15.9% |
| $30,000 - $49,000 | 11.2% | 11.4% | 11.0% |
| $50,000 - $79,000 | 7.0% | 11.4% | 7.9% |
| $85,000 + | 3.4% | 8.9% | 4.7% |
| Prefer not to respond / left blank | 15.1% | 23.6% | 17.4% |
| Health Insurance provider, N (column %) | |||
| Private Health Insurance | 12.5% | 25.2% | 15.7% |
| Medicare | 34.0% | 17.1% | 29.7% |
| Medicaid | 37.9% | 32.5% | 36.4% |
| Other 5 | 3.9% | 4.9% | 4.1% |
| No Coverage | 2.3% | 1.6% | 2.1% |
| Don’t know / Missing | 9.4% | 18.7% | 12.0% |
Affirmative response to “In the past 12 months, did you go to an emergency room for any sickle cell care you needed right away?” OR responded “1 visit, ” “2 visits, ” “3 visits ”, or “4 or more visits ” to “In the past 12 months, how many times did you go to the emergency room because of a pain attack (crisis)? ”
Eight respondents did not provide any information on their ED utilization.
Affirmative response to “White,” “Asian,” “Pacific Islander,” “Native American/Alaskan Native,” or “Other”
Affirmative response to “Only temporarily laid off, sick leave or maternity leave, ” “Keeping house, ” or “Retired.”
Affirmative response to “CHIP, ” “Military Health Care,” “State Sponsored Plan ” or “Other. ”