Table 1.
The impact of COVID-19 pandemic on the diagnosis and management of patients with IEM.
| Percentages of change in the numbers reported by individual IEM centers (March-May 2020 compared to March-May 2019) Median (25th / 75th percentiles) |
Total numbers reported (2019) | Total numbers reported (2020) | Percentages of change in total numbers reported (March-May 2020 compared to March-May 2019) (%) |
Number of feedbacks | |
|---|---|---|---|---|---|
| Numbers of patients' total visits | −67% (−79% / −39%) | 2902 | 856 | −70% | 15 |
| Numbers of patients who visited the center for first time | −72% (−86% / −48%) | 543 | 171 | −68% | 15 |
| Numbers of patients who visited the center for follow up | −77% (−84% / −37%) | 2359 | 685 | −71% | 15 |
| Numbers of emergency visits⁎ | −24% (−81% / +19%) | 53 | 38 | −28% | 13 |
| Numbers of patients whose samples were sent for laboratory analysis | −60% (−83% / −40%) | 1641 | 461 | −72% | 12 |
| Numbers of patients with established new diagnoses | −80% (−87% / −39%) | 195 | 47 | −76% | 12 |
| Numbers of patients who received specialized treatments⁎⁎ | −37% (−67% / −19%) | 665 | 398 | −40% | 13 |
| Numbers of patients who received blood transfusion or similar procedures⁎⁎⁎ | −50% (−75% / −42%) | 14 | 10 | −29% | 5 |
| Numbers of patients who received physiotherapy | −100% (−100% / −95%) | 318 | 20 | −94% | 8 |
| Numbers of patients who received nutritional support | −82% (−92% / −30%) | 663 | 269 | −59% | 11 |
| Numbers of patients who received psychological support | −86% (−97% / −38%) | 488 | 161 | −67% | 9 |
| Numbers of patients referred for other clinical consultations within the same institute⁎⁎⁎⁎ | −71% (−81% / −56%) | 215 | 65 | −70% | 7 |
| March 1st to May 31st 2020 | |||||
| Numbers of working days disrupted due to the COVID-19 pandemic | 55% (8% / 79%) | 14 | |||
| Numbers of medical staff/employees at IEM centers affected by COVID-19 infection or had a leave of absence due to a pandemic related issue | 15% (5% / 24%) | 13 |
⁎
e.g. referrals to the ICU for a decompensated IEM condition or another life threatening condition.
⁎⁎
e.g. enzyme replacement therapy, substrate reduction therapy, dietary formula or a specialized drug.
⁎⁎⁎
e.g. transfusion of plasma or platelets, IV immunoglobulins or plasmapheresis.
⁎⁎⁎⁎
e.g. ophthalmology, nephrology, cardiology, gastroenterology, endocrinology, dermatology.