Table 2.
Results of 17-item Epidermolysis Bullosa Quality of Life questionnaire.
| Options | 0 n (%) |
1 n (%) |
2 n (%) |
3 n (%) |
Weight of contribution of each item to the total score | Alpha if one item deleted | |
|---|---|---|---|---|---|---|---|
| Questions | |||||||
| 1 | Move around inside the house | 13 (15.7) | 31 (37.3) | 21 (25.3) | 18 (21.7) | 0.70 | 0.84 |
| 2 | Ability to bathe/shower | 15 (18.1) | 18 (21.7) | 13 (15.7) | 37 (44.6) | 0.54 | 0.84 |
| 3 | Physical pain | 2 (2.4) | 33 (39.8) | 28 (33.7) | 20 (24.1) | 0.45 | 0.85 |
| 4 | Ability to write | 24 (28.9) | 30 (36.1) | 19 (22.9) | 10 (12) | 0.30 | 0.85 |
| 5 | Ability to eat | 3 (3.6) | 38 (45.8) | 42 (50.6) | 0 (0) | 0.39 | 0.85 |
| 6 | Ability to shop | 9 (10.8) | 24 (28.9) | 33 (39.8) | 17 (20.5) | 0.66 | 0.84 |
| 7 | Sport activities | 0 (0) | 9 (10.8) | 24 (28.9) | 50 (60.2) | 0.53 | 0.85 |
| 8 | Frustration | 19 (22.9) | 23 (27.7) | 27 (32.5) | 14 (16.9) | 0.47 | 0.85 |
| 9 | Move around outside the house | 12 (14.5) | 29 (34.9) | 18 (21.7) | 24 (28.9) | 0.80 | 0.83 |
| 10 | Family relationship | 25 (30.1) | 34 (41.0) | 17 (20.5) | 7 (8.4) | 0.63 | 0.84 |
| 11 | Embarrassment | 25 (30.1) | 28 (33.7) | 12 (14.5) | 18 (21.7) | 0.56 | 0.84 |
| 12 | Home modification | 43 (51.8) | 29 (34.9) | 8 (9.6) | 3 (3.6) | 0.46 | 0.85 |
| 13 | Friendship relations | 23 (27.7) | 34 (41.0) | 11 (13.3) | 15 (18.1) | 0.73 | 0.83 |
| 14 | Anxiety | 5 (6.0) | 28 (33.7) | 30 (36.1) | 20 (24.1) | 0.66 | 0.84 |
| 15 | Financial burden | 1 (1.2) | 14 (16.9) | 29 (34.9) | 39 (47.0) | 0.29 | 0.86 |
| 16 | Depression | 19 (22.9) | 29 (34.9) | 27 (32.5) | 8 (9.6) | 0.65 | 0.84 |
| 17 | Teasing/staring | 2 (2.4) | 32 (38.5) | 34 (41.0) | 15 (18.1) | 0.09 | 0.89 |