Table 1.
Characteristics of Study Population by Sex: UK Cystic Fibrosis Registry
| Female | Male | All | |
|---|---|---|---|
| N (%) | 4605 (47) | 5136 (53) | 9741 |
| Observation, n (%) | 37849 (47) | 43280 (53) | 81129 |
| Observations per patient, mean (SD) | 8.2 (4.7) | 8.4 (4.8) | 8.3 (4.8) |
| Deaths, n (%) | 813 (53) | 730 (47) | 1543 |
| Genotype | |||
| No. delta 508: 2, n (%) | 2361 (51) | 2752 (54) | 5113 (53) |
| No. delta 508: 1, n (%) | 1718 (37) | 1782 (354) | 3500 (36) |
| No. delta 508: 0, n (%) | 327 (7.1) | 354 (6.9) | 681 (7.0) |
| Missing | 199 (4.3) | 248 (4.8) | 447 (4.6) |
| Birth cohort, n (%) | |||
| <1960 | 3 (0.1) | 4 (0.1) | 7 (0.1) |
| 1960–1964 | 68 (1.5) | 115 (2.2) | 183 (1.9) |
| 1965–1969 | 141 (3.1) | 199 (3.9) | 340 (3.5) |
| 1970–1974 | 257 (5.6) | 335 (6.5) | 592 (6.1) |
| 1975–1979 | 365 (7.9) | 473 (9.2) | 838 (8.6) |
| 1980-1984 | 587 (13) | 686 (13) | 1273 (13) |
| 1985–1989 | 668 (15) | 772 (15) | 1440 (15) |
| 1990–1994 | 722 (16) | 749 (15) | 1471 (15) |
| >1995 | 1794 (39) | 1803 (35) | 3597 (37) |
| Age at entry, yrs, mean (SD) | 19.2 (9.0) | 20.0 (9.4) | 19.6 (9.2) |
| Age at diagnosis, yrs, mean (SD) (missing, n = 118) | 3.0 (6.5) | 3.0 (6.8) | 3.0 (6.7) |