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. 2020 Sep 29;10(9):e038633. doi: 10.1136/bmjopen-2020-038633

Table 3.

Outcome domains, measurement instruments and measurement time for the relatives

Outcome domain Measurement instruments Time
Demographic variables and psychiatric medical history T2
 Health-related quality of life SF-12
 Anxiety and depression HADS
 Distress caused by a traumatic event IES-R
 Experience in close relationships ECR-R
 Social support after a crisis CSS
 Major depression MDI
 The extent to which an event is viewed as being central to one’s identity CES-S
Cognitive decline reported by informants (relatives or close friends) IQ-CODE

CES-S, Centrality of Event short; CSS, The Crisis Support Scale; ECR-R, Experience in Close Relationships; HADS, Hospital Anxiety and Depression Scale; IES-R, Impact of Event Scale-Revised; IQ-CODE, The Informant Questionnaire on Cognitive Decline in the Elderly; MDI, Major Depression Inventory; SF-12, 12-item Short Form Survey; T2, 3-month follow-up.