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. 2020 Sep 12;25:52–60. doi: 10.1016/j.ctro.2020.09.003

Table 5.

Patient reported outcome measures and estimated premorbid functioning. All repsonses are calculated to scale scores, reflecting the participants function or degree of symptoms in a given area. A total of 26 participants completed the questionnaires. For EORTC-QLQ-C30 and EORTC-QLQ-BN20 function scales (*), higher scores indicate better function and for symptom scales (**), higher scores indicate more severe symptoms.

Patient reported outcome Mean score (SD) Normative value
EORTC-QLQ-C30
  • -

    global QoL

Functions*
  • -

    role functioning

  • -

    physical functioning

  • -

    cognitive function

  • -

    emotional function

  • -

    social function

Symptoms**
  • -

    Fatigue

  • -

    Nausea and vomiting

  • -

    Pain

  • -

    Dyspnoea

  • -

    Insomnia

  • -

    Appetite loss

  • -

    Constipation

  • -

    Diarrhoea

  • -

    Financial difficulties

  • 70.8 (18.8)

  • 80.7 (27.9)

  • 80.5 (16.7)

  • 75.6 (23.2)

  • 84.3 (18.2)

  • 85.3 (25.1)

  • 25.2 (23.4)

  • 3.2 (8.2)

  • 13.5 (17.7)

  • 11.5 (21.0)

  • 23.1 (27.9)

  • 6.4 (13.4)

  • 3.9 (10.9)

  • 5.1 (12.3)

  • 9.0 (20.1)

 Hjermstadt et al.[53]

  • 75.3

  • 83.3

  • 89.9

  • 86.5

  • 82.8

  • 85.5

  • 28.8

  • 4.0

  • 20.5

  • 14.3

  • 20.4

  • 7.5

  • 10.7

  • 9.4

  • 9.0
EORTC-QLQ-BN20
Functions*
  • -

    Visual disorder

  • -

    Motor dysfunction

  • -

    Communication deficit

  • -

    Future uncertainty

Symptoms**
  • -

    Headache

  • -

    Seizures

  • -

    Drowziness

  • -

    Hairloss

  • -

    Ichy skin

  • -

    Weakness of legs

  • -

    Bladder control

  • 91.1 (10.1)

  • 88.0 (14.7)

  • 90.2 (18.1)

  • 78.8 (27.6)

  • 10.3 (22.7)

  • 5.1 (15.5)

  • 28.0 (28.4)

  • 2.7 (9.2)

  • 6.4 (13.4)

  • 10.3 (18.3)

  • 12.8 (26.8)
HADS
  • -

    Depression

  • -

    Anxiety

  • 2.7 (2.8)

  • 3.1 (3.1)
PSQI
  • -

    Global score

  • 5.6 (2.7)

 Hinz et al.[54].

  • 5.0 (3.37)
PAOFI scale scores
  • -

    Higher cognitive function

  • -

    Motor-perceptual function

  • -

    Memory

  • -

    Language

  • 15.7 (6.1)

  • 9.04 (4.2)

  • 21.5 (6.8)

  • 17.3 (5.7)