Table 1. Mean Magnitude for Baseline 29-Item NOSE HHT (N = 401).
| Variable | Mean (SD) magnitude | % Endorsed (ie, score >0) |
|---|---|---|
| Physical problems | 1.59 (0.83) | NA |
| Blood running down back of your throat | 1.94 (1.07) | 91 |
| Blocked up/stuffy nose | 1.84 (1.04) | 88.5 |
| Nasal crusting | 1.74 (1.03) | 86.5 |
| Fatigue | 1.69 (1.23) | 78.3 |
| Shortness of breath | 1.24 (1.19) | 63.1 |
| Decreased sense of smell/taste | 1.07 (1.13) | 57.6 |
| Functional limitations | 1.28 (0.84) | NA |
| Blow your nose | 2.19 (1.30) | 86.8 |
| Bend over/pick something up off the ground | 1.76 (1.21) | 82.8 |
| Breathe through your nose | 1.57 (1.15) | 78.3 |
| Exercise | 1.50 (1.19) | 76.6 |
| Work at your job (or school) | 1.29 (1.19) | 68.3 |
| Stay asleep | 1.28 (1.11) | 69.3 |
| Enjoy time with family/friends | 1.20 (1.04) | 69.6 |
| Eat certain foods (eg, spicy) | 1.18 (1.28) | 56.9 |
| Have intimacy with spouse or significant other | 1.17 (1.17) | 63.3 |
| Travel (eg, by plane) | 1.11 (1.20) | 59.4 |
| Fall asleep | 1.00 (1.06) | 57.6 |
| Clean your house/apartment | 0.98 (1.04) | 57.4 |
| Go outdoors regardless of the weather/season | 0.96 (1.06) | 55.1 |
| Cook/prepare meal | 0.71 (0.93) | 45.1 |
| Emotional consequences | 1.95 (1.02) | NA |
| Fear of nosebleeds in public | 2.63 (1.24) | 92.8 |
| Fear of not knowing when your next nosebleed will be | 2.47 (1.26) | 90.0 |
| Getting blood on your clothes | 2.40 (1.27) | 89.5 |
| Fear of not being able to stop a nosebleed | 2.11 (1.37) | 79.6 |
| Embarrassment | 2.02 (1.30) | 82.8 |
| Frustration/restlessness/irritability | 1.77 (1.33) | 75.3 |
| Reduced concentration | 1.57 (1.33) | 69.3 |
| Sadness | 1.55 (1.34) | 67.6 |
| The need to buy new clothes | 1.07 (1.22) | 53.9 |
Abbreviations: HHT, hereditary hemorrhagic telangiectasia; NA, not applicable; NOSE, Nasal Outcome Score for Epistaxis.