Table 3.
Characteristics of the carer, care recipient, and caring situation (all conditions) for the sample of carers included in the construct validity and responsiveness analysis.
| Construct | Construct validity sample at baseline (n = 576)∗ | Responsiveness sample at baseline (n = 314)∗ | Responsiveness sample at follow-up (n = 314)∗ |
|---|---|---|---|
| Carer | |||
| Age, y, mean (SD) | 62 (11.10) | 63 (10.01) | 64 (10.01)† |
| Gender, female, n (%) | 367 (64) | 191 (63) | 191 (63)† |
| Health status (EQ-5D-5L), mean (SD) | 0.76 (0.21) | 0.80 (0.21) | 0.74 (0.23) |
| Occupation, in paid employment, n (%) | 189 (33) | 84 (14) | 84 (14) |
| Self-rated life satisfaction, scale 0-10, mean (SD) | 6.7 (2.23) | 6.7 (2.33) | 7 (2.24) |
| Care recipient | |||
| Age, y, mean (SD) | 74 (18.33) | 73 (19.11) | 74 (19.11)† |
| Gender, male, n (%) | 203 (35) | 108 (36) | 108 (36)† |
| Has cognitive problems, yes, n (%) | 340 (59) | 177 (58) | 205 (68) |
| Has daily dependencies, yes, n (%) | 518 (90) | 269 (89) | 279 (93) |
| Health status (EQ-5D-5L), mean (SD) | 0.32 (0.31) | 0.30 (0.35) | 0.31 (0.35) |
| Direction of health status, declining, n (%) | 373 (66) | 191 (63) | 174 (58) |
| Caring situation | |||
| Co-residence, yes, n (%) | 266 (46) | 153 (51) | 156 (52) |
| Relationship to carer, spouse, n (%) | 199 (35) | 111 (37) | 111 (37)† |
| Duration of caring, years, mean (SD) | 9.9 (10.20) | 10.9 (126.5) | 11.9 (126.5)† |
| Time spent caring >20 h per wk, n (%) | 295 (51) | 183 (60) | 193 (64) |
| Time spent caring >50 h per wk, n (%) | 165 (29) | 100 (32) | 115 (37) |
| Provides personal care, n (%) | 343 (68) | 183 (60) | 218 (72) |
| Identifies as the main carer, yes, n (%) | 408 (72) | 233 (77) | 233 (77)† |
| Other people are involved in the caring, yes, n (%) | 367 (65) | 182 (61) | 182 (61)† |
∗
Pairwise associations are based on complete cases in which participants completed both the quality-of-life measure and the constructs involved in the validity test.
†
Question not asked in the follow-up questionnaire.