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. Author manuscript; available in PMC: 2021 Aug 1.
Published in final edited form as: Alzheimers Dement. 2020 Jul 13;16(8):1115–1124. doi: 10.1002/alz.12095

Table 2.

Age, QOL Ratings, and ZBI by CDR® plus NACC FTLD

CDR® plus NACC FTLD
All 0 0.5 1 2 3
(n=312) (n=236) (n=31) (n=16) (n=21) (n=8)
Age at Visit* 48.5 (14.2) 45.6 (14.1) 55.8 (10.1) 58.7 (9.0) 59.1(12.5) 59.0 (10.4)
QOL, self-reported**
 Very good 133 (51.8%) 117 (58.2%) 9 (32.1%) 5 (38.5%) 1 (7.7%) 1 (50.0%)
 Good 96 (37.4%) 68 (33.8%) 12 (42.9%) 5 (38.5%) 11 (84.6%) 0 (0.0%)
 Fair 24 (9.3%) 13 (6.5%) 6 (21.4%) 3 (23.1%) 2 (16.7 %) 1 (7.7%) 1 (50.0%)
 Poor 4 (1.6%) 3 (1.5%) 1 (3.6%) 0 (0.0%) 0 (0.0%) 0 (0.0%)
QOL, informant-rated***
 Very good 146 (55.3%) 126 (62.7%) 9 (34.6%) 4 (28.6%) 6 (30.0%) 1 (33.3%)
 Good 93 (35.2%) 68 (33.8%) 9 (34.6%) 8 (57.1%) 7 (35.0%) 1 (33.3%)
 Fair 19 (7.2%) 5 (2.5%) 7 (26.9%) 1 (7.1 %) 6 (30.0 %) 0 (0.0%)
 Poor 6 (2.3%) 2 (1.0%) 1 (3.8%) 1 (7.1%) 1 (5.0%) 1 (33.3%)
ZBI**** 10.5 (14.0) 5.9 (8.6) 15.5 (16.2) 32.6 (16.2) 35.3 (12.8) 11.8 (10.2)
*

The ANOVA F-test p-value for comparing Age at Visit across CDR® plus NACC FTLD is <.0001.

**

DEMQOL.

***

DEMQOL-proxy.

****

Zarit Burden Interview

Values presented are N (%) for categorical variables and mean (standard deviation) for continuous variables Data presented above are based on non-missing values for each variable only.