Table 1.
Baseline Characteristics of ILD Clinics in the PFF CCN
| Item | Result |
|---|---|
| Members | ... |
| No. of ILD-focused pulmonologists working in the ILD clinic | ... |
| 1 | 2 (6) |
| 2-5 | 24 (67) |
| > 5 | 10 (27) |
| Nursing support for the ILD clinic | 33 (92) |
| Nurses who are dedicated solely to ILD clinic (in the clinics with nurses) | 18 (56) |
| Advanced practice providers working in the ILD clinic | 18 (50) |
| Infrastructure | ... |
| New patient visits per y | 250 (150-383) |
| Total patient visits per y | 1000 (500-1,500) |
| No. of half days of ILD clinic per wk | 7 (4-8) |
| Average wait time from referral to clinic visit | ... |
| 1 wk-1 mo | 15 (42) |
| 1-3 mo | 16 (44) |
| 3-12 mo | 4 (11) |
| Unknown | 1 (3) |
| Most patients traveling > 60 min to get to clinic | 19 (53) |
| Use of telemedicine | 3 (8) |
| Resources | ... |
| Access to social worker | 11 (31) |
| Access to respiratory therapists | 24 (67) |
| Access to a palliative care program | 33 (92) |
| Access to a dedicated ILD palliative care program | 3 (8) |
| Access to a local pulmonary rehabilitation program | 36 (100) |
| Access to a local support group | 36 (100) |
| Participate in clinical trialsa | 35 (100) |
| Participate in patient registries | 32 (89) |
| Participate in biobanking of specimens | 31 (86) |
| Multidisciplinary conference | ... |
| Participation in a multidisciplinary conference | 35 (97) |
| Frequency of multidisciplinary conference | ... |
| > Once/wk | 1 (3) |
| Once/wk | 17 (49) |
| Once/2 wks | 9 (26) |
| Once/mo | 8 (23) |
Data are presented as No. (%) or median (interquartile range). CCN = Care Center Network; ILD = interstitial lung disease; PFF = Pulmonary Fibrosis Foundation.
a
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