Table 1.
Patients needs |
---|
Physical care |
Symptomatic management of symptoms of COVID-19 infection, e.g., Dyspnoea, cough, fever, pain |
Management of palliative care emergencies |
Psychological impact |
Isolation and social distancing results in loss of self-esteem, autonomy, feeling of connectedness with family and the health-care system |
Fear of the unknown due to uncertainty and disease progression |
Fear of contracting the infection |
Fear of not getting appropriate medical help |
Social impact |
Restriction on social gathering, travel results in lack of access to social support groups |
Infected families are socially stigmatized |
Loss of jobs/incomes |
Limited availability of daily commodities |
Spiritual impact |
Cancellation of religious meets |
Traditional death rituals are truncated |
Ethical and legal aspects |
Triaging for in hospital palliative care and ventilators |
Protection of patients, family members, health care workers and society from infection |
EOLC issues |
Inadequate discussion regarding EOLC |
Lack of an advanced directive |
Distance from family members causes difficulty in decision-making |
Difficulty in ensuring dignity of death due to strict infection prevention protocol |
Structure and process of care: The barriers are |
Limited resources and its appropriate allocation |
Preparedness of the palliative care team for the outbreak |
Lack of national policy integrating palliative care with the health care system and outbreak management |
Caregivers needs |
Inadequate knowledge about the disease leads to fear of uncertainty |
Uncertainty of access to medical help |
Lack of social and spiritual support |
Belief in several Myths regarding pandemics |
Fear of contracting the infection |
Health care worker’s needs |
Stress, exhaustion and insomnia due to long working hours |
Fear of getting infection |
Fear of death |
Separation from family causes depression |
Lack of resources including personal protective equipment |
Inadequate manpower trained in palliative care |
EOLC: End of life care