Table 2.
Women’s preferences regarding risk-based screening and prevention for each hypothetical risk scenario
| All women N = 942 |
Low risk N = 236 |
Average risk N = 228 |
Moderate risk N = 239 |
High risk N = 239 |
||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Want to know breast cancer risk, n (%)a | ||||||||||
| Yes | 756 | (80.3) | ||||||||
| No | 70 | (7.4) | ||||||||
| Don’t know | 99 | (10.5) | ||||||||
| Missing value | 17 | (1.8) | ||||||||
| Willing to get mammogram, n (%) | 727 | (96.2) | ||||||||
| Willing to complete questionnaire, n (%) | 725 | (95.9) | ||||||||
| Willing to provide blood sample, n (%) | 738 | (97.6) | ||||||||
| Risk result in letter, n acceptable (%)a | 621 | (67.1) | 199 | (86.1) | 160 | (70.2) | 144 | (61.5) | 118 | (50.2) |
| Need for consultation, n yes (%)a | 722 | (76.6) | 131 | (56.7) | 158 | (70.2) | 214 | (91.5) | 219 | (93.2) |
| Preferred risk counsellor, n (%)b | ||||||||||
| General practitioner | 539 | (57.2) | 91 | (38.6) | 126 | (55.3) | 169 | (70.7) | 153 | (64.0) |
| Oncologist | 293 | (31.1) | 38 | (16.1) | 58 | (25.4) | 94 | (39.3) | 103 | (43.1) |
| Nurse | 93 | (9.9) | 21 | (8.9) | 24 | (10.5) | 24 | (10.0) | 24 | (10.0) |
| Geneticist | 77 | (8.2) | 14 | (5.9) | 10 | (4.4) | 29 | (12.1) | 24 | (10.0) |
| Radiologist | 64 | (6.8) | 11 | (4.7) | 15 | (6.6) | 24 | (10.0) | 14 | (5.9) |
| Radiographer | 63 | (6.7) | 15 | (6.4) | 18 | (7.9) | 19 | (7.9) | 11 | (4.6) |
| Use website, n yes (%)c | 730 | (79.0) | 167 | (72.6) | 172 | (76.4) | 203 | (86.8) | 188 | (80.0) |
| Supplemental screening, n yes (%)c | 370 | (39.3) | 63d | (27.4) | 89e | (39.6) | 117e | (50.0) | 101f | (43.0) |
| Preferred screening interval low risk | ||||||||||
| 2-year | 116 | (50.7) | ||||||||
| 3-year | 30 | (13.1) | ||||||||
| 4-year | 30 | (13.1) | ||||||||
| 5-year | 13 | (5.7) | ||||||||
| Don’t know | 18 | (7.8) | ||||||||
| Other | 22 | (9.6) | ||||||||
| Preferred screening start age low risk | ||||||||||
| 50 years | 64 | (27.9) | ||||||||
| 51 years | 3 | (1.3) | ||||||||
| 52 years | 12 | (5.2) | ||||||||
| 53 years | 8 | (3.5) | ||||||||
| 54 years | 7 | (3.1) | ||||||||
| 55 years | 37 | (16.2) | ||||||||
| 56 years | 3 | (1.3) | ||||||||
| 57 years | 3 | (1.3) | ||||||||
| 58 years | 3 | (1.3) | ||||||||
| 59 years | 1 | (0.4) | ||||||||
| 60 years | 13 | (5.7) | ||||||||
| Other | 43 | (18.8) | ||||||||
| Don’t know | 32 | (14.0) | ||||||||
| Preferred screening interval high risk | ||||||||||
| 6-month | 31 | (30.7) | ||||||||
| 1-year | 51 | (50.5) | ||||||||
| 18-month | 1 | (1.0) | ||||||||
| 2-year | 4 | (4.0) | ||||||||
| Don’t know | 6 | (5.9) | ||||||||
| Other | 8 | (7.9) | ||||||||
| Preferred screening start age high risk | ||||||||||
| 40 years | 60 | (59.4) | ||||||||
| 42 years | 1 | (1.0) | ||||||||
| 45 years | 5 | (5.0) | ||||||||
| 50 years | 2 | (2.0) | ||||||||
| Other | 22 | (21.8) | ||||||||
| Don’t know | 11 | (10.9) | ||||||||
| Increased breast self-exam (% yes)g | 597 | (64.7) | 65 | (28.4) | 132 | (58.7%) | 204 | (87.2) | 196 | (83.4) |
| Change diet (%)h | ||||||||||
| Yes | 445 | (47.2) | 101 | (42.8) | 91 | (39.9) | 129 | (54.0) | 124 | (51.9) |
| No | 9 | (1.0) | 6 | (2.5) | 0 | (−) | 1 | (0.4) | 2 | (0.8) |
| No, not required | 362 | (38.4) | 98 | (41.5) | 105 | (46.1) | 78 | (32.6) | 81 | (33.9) |
| Don’t know | 40 | (4.2) | 8 | (3.4) | 11 | (4.8) | 8 | (3.3) | 13 | (5.4) |
| Other | 61 | (6.5) | 14 | (5.9) | 15 | (6.6) | 18 | (7.5) | 14 | (5.9) |
| Change exercise habits (%)h | ||||||||||
| Yes | 307 | (32.6) | 64 | (27.1) | 71 | (31.1) | 86 | (36.0) | 86 | (36.0) |
| No | 119 | (12.6) | 42 | (17.8) | 30 | (13.2) | 25 | (10.5) | 22 | (9.2) |
| No, not required | 332 | (35.2) | 86 | (36.4) | 83 | (36.4) | 78 | (32.6) | 85 | (35.6) |
| Don’t know | 84 | (8.9) | 17 | (7.2) | 19 | (8.3) | 26 | (10.9) | 22 | (9.2) |
| Other | 75 | (8.0) | 18 | (7.6) | 19 | (8.3) | 19 | (7.9) | 19 | (7.9) |
| Change alcohol consumption (%)h | ||||||||||
| Yes | 277 | (29.4) | 58 | (24.6) | 59 | (25.9) | 71 | (29.7) | 89 | (37.2) |
| No | 55 | (5.8) | 25 | (10.6) | 12 | (5.3) | 10 | (4.2) | 8 | (3.3) |
| No, not required | 531 | (56.4) | 130 | (55.1) | 142 | (62.3) | 136 | (56.9) | 123 | (51.5) |
| Don’t know | 30 | (3.2) | 9 | (3.8) | 4 | (1.8) | 10 | (4.2) | 7 | (2.9) |
| Other | 24 | (2.5) | 5 | (2.1) | 5 | (2.2) | 7 | (2.9) | 7 | (2.9) |
| Willing to consider medication (% yes)i | 241 | (58.2) | 112 | (53.8) | 129 | (62.6) | ||||
| Tamoxifen preference, n (%)j | ||||||||||
| Pill | 171 | (35.7) | 90 | (37.7) | 81 | (33.9) | ||||
| Cream | 125 | (26.2) | 59 | (24.7) | 66 | (27.6) | ||||
| No preference | 93 | (19.5) | 42 | (17.6) | 51 | (21.3) | ||||
| Neither | 47 | (9.8) | 26 | (10.9) | 21 | (8.8) | ||||
| Don’t know | 32 | (6.7) | 17 | (7.1) | 15 | (6.3) | ||||
| Anecdotal knowledge of tamoxifen (% yes)j | 55 | (11.8) | 22 | (9.4) | 33 | (14.1) | ||||
a17 women with missing value (1.8%) were excluded; b multiple answers possible; c18 women with missing value (1.9%) were excluded; dbased on a 4-year screening interval; ebased on a 2-year screening interval; fbased on a 1-year screening interval; g19 women with missing value (2.0%) were excluded; h25 women with missing value (2.7%) were excluded; i64 women with missing value (13.4%) were excluded; j10 women with missing value (2.1%) were excluded