Table 1.
Description of the Measures used in the Florida Cohort Assessments
| Key Variables | Baseline | Follow up |
Source |
|---|---|---|---|
| 1. Socio-Demographics | X | ||
| 2. General Health | |||
| Quality of Life | X | X | Short Form (SF)-8 Health Survey (Ware et al., 2001) |
| Physical Activity | X | ||
| 3. Social Support | |||
| Social Support (1) | X | Medical Outcomes Study - Social Support Survey (MOS-SSS) – Emotional / Informational Support and Tangible Support (Shelbourne & Stewart, 1991) | |
| Social Support (2) | X | Patient Reported Outcomes Measurement Information System (PROMIS) SF Emotional Support 6a (Pilkonis et al., 2011) | |
| Stigma and Discrimination | X | Enacted Stigma Scale (Herek et al., 2013) | |
| 4. Health Care Utilization | |||
| Stay at hospital, emergency room, mental health provider, dental care provider, taken care of by friends or family | X | X | |
| 5. HIV Care and Treatment | |||
| HIV duration, testing facility, linkage to care, barriers to care, HIV care services | X | ||
| HIV Antiviral Medication Adherence | X | X | Ira Wilson ART adherence measure (Wilson et al., 2014) |
| HIV care satisfaction | X | ||
| Current ART | X | X | |
| 6. Mental Health | |||
| Depression | X | Patient Health Questionnaire (PHQ)-8 (Kroenke et al., 2001) | |
| Anxiety(1) | X | Generalized Anxiety Disorder (GAD)-7 (Spitzer et al., 2006) | |
| Anxiety(2) | X | PROMIS SF Anxiety 7a (Pilkonis et al., 2011) | |
| PTSD | X | Primary Care PTSD Screen (PC-PTSD) (Kimerling et al., 2006) | |
| Life Stress | X | INTERHEART Study (Lahiri et al., 2007) | |
| Use of antidepressant medication, mental health services | X | ||
| Loneliness | X | UCLA Loneliness Scale (Russell, 1996) | |
| 7. Cognitive Function | |||
| Memory experiences | X | Abbreviated cognitive difficulties scale (Derouesne et al., 1993) | |
| Impulsivity | X | Barratt Impulsivity Scale-Brief (BIS-Brief) (Steinberg et al., 2013) | |
| Planning | X | Neuro-QOL Cognition Function Short Form (Gershon et al., 2012) | |
| 8. Behavioral Risk Factors | |||
| Alcohol use, cigarette smoking, and drug use | X | X | |
| Alcohol use consequences (1) | X | Short Inventory of Problems (SIP-2R) (Kiluk et al., 2013) | |
| Alcohol use consequences (2) | X | PROMIS Alcohol Positive & Negative Consequences 7a (Pilkonis et al., 2013) | |
| Sexual Behaviors | X | X | VACS Cohort sexual risk measures (Justice et al., 2006) |
| Relationships | X | ||
| 9. Other Health Conditions | |||
| Pain Scale | X | X | Brief Pain Inventory (BPI) short form (Cleeland et al., 1994) |
| Pain Interference | X | PROMIS SF Pain Interference 4a (Amtmann et al., 2010) | |
| Sleep | X | PROMIS SF Sleep Disturbance 6a (Buysse et al., 2010) | |
| Screening: Hepatitis C, TB, pap smear, hysterectomy, History of STDs | X | ||
| Pregnancy | X | X | |
| Testing for cancer | X | ||
| 10. Others | |||
| Use of digital technology (phone, apps, etc) | X | ||
| PrEP | X | ||
| Medical conditions and medications | X | ||
| 11. Medical Record Abstraction | |||
| Current conditions and medications | X | ||
| Weight, Height, BMI | X | ||
| HIV viral load, CD4 count, HCV antibody and viral, complete blood panel, completed metabolic panel | X | X | |
| HIV viral resistance | X | ||
| 12. eHARS | X | X | |
| HIV viral load, CD4 count | X | X | |
| Years of HIV diagnosis | X | ||
| Retention in Care | X | X |